Happy Thursday everyone!
This week, we’re sharing a video that will warm your heart, as well as an article about how to improve care in older Multiple Myeloma patients. We also have a piece discussing the intersections of rare disease and mental health, and an article about rare disease life as told by astrological signs.
Sit back and enjoy this week’s editor’s choice.
[one_half]
[/one_half] [one_half_last]
Video of Twin Comforting her Sister Diagnosed with Rare Prader-Willi Syndrome
Prader-Willi syndrome causes relentless hunger– but this video shows the comfort a sibling can bring.
[/one_half_last] [one_half]
[/one_half] [one_half_last]
If Rare Disease Life had Zodiac Signs
Whether you’re a comfort-seeking Taurus or an adventurous Saggitarius, there’s a place in the rare world for you.
[/one_half_last] [one_half]
[/one_half] [one_half_last]
Study Finds Under-Use of Supportive Care in Older Multiple Myeloma Patients
How can we better support people in the myeloma community>
[/one_half_last] [one_half]
[/one_half] [one_half_last]
Let’s Talk About Mental Health and Rare Disease
Rare diseases cause physical pain, but they can result in emotional burdens as well.
[one_half]
