Potential Link Between a Treatment for Systemic Juvenile Idiopathic Arthritis and Lung Disease

The number of systemic juvenile idiopathic arthritis patients who develop lung disease (sJIA-LD) is rising in both the U.S., Europe, the Middle East, and Canada. This trend has been notable…

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VACTERL Association Takes the Life of a Six Year Old Only Five Days After Her Sister was Born
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VACTERL Association Takes the Life of a Six Year Old Only Five Days After Her Sister was Born

According to a story from Express Digest, young mom Emily Nixon, age 25, was heartbroken when her oldest daughter Darcy Roger, age 6, passed away only five days after her…

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“I First Have to Explain it to the Doctors:” Tetrasomy X, a Rare Patient Story From the Czech Republic
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“I First Have to Explain it to the Doctors:” Tetrasomy X, a Rare Patient Story From the Czech Republic

Little Rozárka’s mother isn’t giving up. Her daughter is the only person in the Czech Republic with tetrasomy X, and is one of 50 people in the world with the…

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