Rare Community Profiles: PKD Foundation and IQVIA Partner to Create Next-Gen ADPKD Registry
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Rare Community Profiles: PKD Foundation and IQVIA Partner to Create Next-Gen ADPKD Registry

Rare Community Profiles   Rare Community Profiles is a new Patient Worthy article series of long-form interviews featuring various stakeholders in the rare disease community, such as patients, their families,…

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Developing Novel Solutions for ADPKD: An Interview with XORTX Therapeutics’ CEO Dr. Allen Davidoff
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Developing Novel Solutions for ADPKD: An Interview with XORTX Therapeutics’ CEO Dr. Allen Davidoff

There are limited therapeutic options for people living with autosomal dominant polycystic kidney disease (ADPKD); currently, the only real standards-of-care include dialysis and kidney transplantation. When discussing the therapeutic landscape,…

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How to be a Patient Peer: Providing Resources for People with ADPKD
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How to be a Patient Peer: Providing Resources for People with ADPKD

Acknowledgment: This story is sponsored by Otsuka America Pharmaceutical, Inc. and is promoted through the Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing…

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Year Two of This Alport Syndrome Trial Concludes with Encouraging Findings
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Year Two of This Alport Syndrome Trial Concludes with Encouraging Findings

According to a story from GlobeNewswire, the biopharmaceutical company Reata Pharmaceuticals, Inc., recently announced that year two of its phase 3 clinical trial has been completed. This trial is testing…

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RGLS4326 Granted Orphan Drug Designation for Treatment of ADPKD
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RGLS4326 Granted Orphan Drug Designation for Treatment of ADPKD

  In a recent press release, biopharmaceutical company Regulus Therapeutics, Inc. announced that their drug candidate, RGLS4326, received Orphan Drug Designation for the treatment of autosomal dominant polycystic kidney disease…

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A Polycystic Kidney Disease Patient’s Advertisement for a Kidney Donor Finds a Surprising Match
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A Polycystic Kidney Disease Patient’s Advertisement for a Kidney Donor Finds a Surprising Match

  By Rachel Whetstone from In The Cloud Copy Shelly Wheaton began a car sign campaign in September to look for a live kidney donor. She was on dialysis because…

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First Patient Enrolled in Phase 3 Trial for Autosomal Dominant Polycystic Kidney Disease
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First Patient Enrolled in Phase 3 Trial for Autosomal Dominant Polycystic Kidney Disease

Do you have ADPKD? If you or someone you know has ADPKD, email us at [email protected]. We'd love to hear from you about your experience! According to a story from…

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ICYMI: More Steps Required for Experimental ADPKD Drug in Order to Obtain Orphan Designation
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ICYMI: More Steps Required for Experimental ADPKD Drug in Order to Obtain Orphan Designation

According to a story from thenewsreports.com, the biopharmaceutical company XORTX Therapeutics, Inc., recently announced that the company and its partner Cato Clinical Research have received correspondence from the US Food…

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Drug for Treating Autosomal Dominant Polycystic Kidney Disease Gets Expanded Indication

According to a story from businesswire.com, Otsuka Pharmaceutical Europe Ltd recently announced that its product JINARC, also known as tolvaptan, now has an expanded therapeutic indication after a recent approval…

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