Four Doctors Who Worked on the Development of Tafamidis Criticize its Price
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Four Doctors Who Worked on the Development of Tafamidis Criticize its Price

  A recent article in Bloomberg’s SFGate focused on the price of drugs. The average patient cannot afford the price of many drugs now on the market. Insurance companies have…

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A New Pediatric Precision Medicine Center is Opening in Utah
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A New Pediatric Precision Medicine Center is Opening in Utah

A new precision medicine center, specifically for pediatrics, has launched in Utah. This new center is the result of collaborative efforts from the Intermountain Primary Children's Hospital, Intermountain Precision Genomics,…

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At 49, She Got Her PhD to Help Her Son With Angelman. Now, She Created COMBINEDBrain To Help Many Related Rare Diseases.

As originally reported in Angelman Syndrome News, Terry Jo Bichell is a PhD researcher, former director and scientific officer of the Angelman Biomarkers and Outcomes Measures Alliance and Tennessee's ambassador…

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Small Study Suggests Folic Acid and Betaine Not Effective on Angelman Syndrome Symptoms

By Jodee Redmond from In The Cloud Copy The results of a study have found that betaine and the active form of folic acid, L-methylfolate, are not effective measures to…

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The Current Plasma Shortage is Worrying to Those Who Depend on Treatments

By Rachel Whetstone from In The Cloud Copy For millions of Americans who are affected by rare diseases, hope and health lies in the availability of plasma donations. One use…

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