The Importance of Diagnoses: Living with Lyme Disease and Hashimoto’s Disease
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The Importance of Diagnoses: Living with Lyme Disease and Hashimoto’s Disease

Obtaining a diagnosis for a rare disease tends to be very difficult. Doctors do not immediately expect that rare conditions are causing one's symptoms; they blame more common conditions first.…

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Miracle Flights has Paid for Over 130,000 Flights to get Rare Disease Patients to Appointments
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Miracle Flights has Paid for Over 130,000 Flights to get Rare Disease Patients to Appointments

When your child receives a rare diagnosis that needs instant care, you don't have time to contemplate finances and plan out your budget. You just have to act. That was…

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Ethnobotanical Medicine is Proven to be an Effective Treatment for Lyme Disease
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Ethnobotanical Medicine is Proven to be an Effective Treatment for Lyme Disease

Lyme disease is the most common vector-borne disease, and it has become more prominent due to climate change and urban developments spreading further into wooded areas. Treatment is typically effective…

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Trofinetide Granted Rare Pediatric Disease Designation for the Treatment of Rett Syndrome

ACADIA Pharmaceuticals, working with Neuren Pharmaceuticals, has recently been granted the Rare Pediatric Disease designation from the FDA for their therapy Trofinetide. This drug is intended for the treatment of…

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How Immunotherapies are Being Used for the Treatment of Mantle Cell Lymphoma
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How Immunotherapies are Being Used for the Treatment of Mantle Cell Lymphoma

Mantle cell lymphoma is a cancer that often responds well to initial treatment. Because of this, doctors often recommend intense treatment soon after diagnosis. While it is often successful, sometimes…

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‘Stranger Things’ Star Opens up (Again) About Cleidocranial Dysplasia 
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‘Stranger Things’ Star Opens up (Again) About Cleidocranial Dysplasia 

We're no stranger to 'Stranger Things' breakout star Gaten Matarazzo, who captured our attention playing Dustin on the hit show -- but he also captured our hearts when he became…

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