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Daily Archives: March 26, 2020

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Unique Stem Cell Therapy Could Help Treat Gastroparesis
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Unique Stem Cell Therapy Could Help Treat Gastroparesis

  • Post author:James Moore
  • Post published:March 26, 2020
  • Post category:Gastroparesis/Rare Disease

According to a story from BioPorfolio, a recent study first published in STEM CELLS Translational Medicine describes a unique stem cell procedure that has the potential to be a major step…

Continue Reading Unique Stem Cell Therapy Could Help Treat Gastroparesis
Gene Therapy Being Studied as Treatment for Huntington’s Disease

Gene Therapy Being Studied as Treatment for Huntington’s Disease

  • Post author:Kendall Mason
  • Post published:March 26, 2020
  • Post category:Huntington's Disease/Rare Disease

Current treatment for Huntington's disease only relieves symptoms, allowing for the progression of the disease to continue. UniQure, a company that works with gene therapies, aims to change this. They…

Continue Reading Gene Therapy Being Studied as Treatment for Huntington’s Disease
FDA Recommends Clinical Trials Go Virtual
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FDA Recommends Clinical Trials Go Virtual

  • Post author:Sunniva Bean
  • Post published:March 26, 2020
  • Post category:Rare Disease

As originally reported in Yahoo Finance, the coronavirus is disrupting many of our expectations of how we planned to live out the next few months. Some frequenters of the hospitals…

Continue Reading FDA Recommends Clinical Trials Go Virtual
MEK Inhibitor Successfully Treats Young Patients’ Neurofibromatosis Tumors
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MEK Inhibitor Successfully Treats Young Patients’ Neurofibromatosis Tumors

  • Post author:James Moore
  • Post published:March 26, 2020
  • Post category:Neurofibromatosis/Neurofibromatosis Type 1

According to a story from Esmo, the results of a recent phase 2 clinical trial bode well for pediatric and adolescent patients with neurofibromatosis type 1 (NF-1), a rare genetic…

Continue Reading MEK Inhibitor Successfully Treats Young Patients’ Neurofibromatosis Tumors
Rheumatologists Could Play an Important Role in Fighting COVID-19
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Rheumatologists Could Play an Important Role in Fighting COVID-19

  • Post author:James Moore
  • Post published:March 26, 2020
  • Post category:Hemophagocytic lymphohistiocytosis/Rare Disease

According to a story from Medpage Today, rheumatologists could play an important role in treating patients with the most severe cases of COVID-19/coronavirus. This is because some of the drugs…

Continue Reading Rheumatologists Could Play an Important Role in Fighting COVID-19
Living With Primary Hyperoxaluria: A Rare Patient Story
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Living With Primary Hyperoxaluria: A Rare Patient Story

  • Post author:James Moore
  • Post published:March 26, 2020
  • Post category:Primary Hyperoxaluria Type 1/Primary hyperoxaluria type 2/Rare Disease

Molly Ouimet was three years old when she got her first kidney stone. Molly, who wasn't very vocal at the time, had a difficult time explaining the pain that she…

Continue Reading Living With Primary Hyperoxaluria: A Rare Patient Story
New Test Measures Balance Issues in Multiple Sclerosis Patients
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New Test Measures Balance Issues in Multiple Sclerosis Patients

  • Post author:Kendall Mason
  • Post published:March 26, 2020
  • Post category:Multiple Sclerosis

Balance issues are often a difficult symptom to detect and track in those with multiple sclerosis. It is important that these problems are addressed by doctors, as they can lead…

Continue Reading New Test Measures Balance Issues in Multiple Sclerosis Patients
Advice for Adrenoleukodystrophy Patients During the COVID-19 Pandemic

Advice for Adrenoleukodystrophy Patients During the COVID-19 Pandemic

  • Post author:Kendall Mason
  • Post published:March 26, 2020
  • Post category:Adrenoleukodystrophy

Living with a rare disease during this pandemic is scary. There are additional concerns, risks, and worries that must be considered. Those affected by adrenoleukodystrophy have to keep many of…

Continue Reading Advice for Adrenoleukodystrophy Patients During the COVID-19 Pandemic

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