In the first part of the "Save Our Medicine" series, you met moms Tiffany, DeAnna, and Sara, who are working to make a change and save experimental medication access for…
According to a recent study by the investigative staff at Tufts University in Boston, Massachusetts, there is a direct correlation between the ethnicity or race of the site personnel and…
A recent study has found that the combination of temozolomide (T), vincristine (V), and irinotecan (I), may be the best standard of care for all patients (children and adults) diagnosed…
In a recent article from Porphyria News, Claire Richmond describes how she lives with acute hepatic porphyria (AHP), a rare disease that requires long-term management. Acute Hepatic Porphyria (AHP)…
Cutaneous T-cell lymphoma (CTCL) is a rare type of cancer with its origin (pathogenesis) found in white blood cells (T lymphocytes). The disease is incurable and debilitating. A recent article…
According to a recent article, a study shows patients with nondialysis-dependent chronic kidney disease and transient or chronic hyperkalemia, correspond with major adverse cardiovascular events (MACE) and even death. Chronic…
The National Institute for Health and Care Excellence (NICE) has just recommended a gene silencing treatment for acute hepatic porphyria (AHP), a rare disease. AHP AHP is a term for…
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