According to a recent article, at the American Academy of Neurology annual meeting in 2022, the importance of disease-modifying therapies for patients diagnosed with rare pediatric disorders was highlighted. Lisa…
There are numerous ways to find treatments for rare diseases, with the major method that springs into everyone's minds being clinical trials starting from scratch. However, in many cases, drugs…
Fibromyalgia is a condition that is characterized by fatigue, memory issues, and musculoskeletal pain. It is also associated with depression, anxiety, and irritable bowel syndrome (IBS). Symptoms of fibromyalgia include…
Understanding rare diseases is integral in treating them. In order to do so, research into the underlying causes and factors behind these conditions is needed. A recent study published in…
Recently, an article highlighted one man’s life journey after being diagnosed with rare cervical dystonia. Dystonia Dystonia is a chronic movement disorder, existing in the same family as the more…
Unfortunately, there are a number of racial and ethnic disparities in healthcare which position certain groups for poorer outcomes. For example, Black individuals often have lesser access to adequate medical…
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