Raising Phelan-McDermid Syndrome Awareness (And How YOU Can Get Involved at the EL-PFDD Meeting!): An Interview with Geraldine Bliss (Pt. 2)
Photo courtesy of Geraldine Bliss

Raising Phelan-McDermid Syndrome Awareness (And How YOU Can Get Involved at the EL-PFDD Meeting!): An Interview with Geraldine Bliss (Pt. 2)

Before you read on, make sure to check out Part 1 of our interview with Geraldine Bliss, the President and Co-Founder of CureSHANK and mother to Charles, who has Phelan-McDermid syndrome. Today,…

Continue Reading Raising Phelan-McDermid Syndrome Awareness (And How YOU Can Get Involved at the EL-PFDD Meeting!): An Interview with Geraldine Bliss (Pt. 2)
Becoming an Advocate for Phelan-McDermid Syndrome (PMS): Lacy and Avenly’s Story
Photo courtesy of Lacy Biram

Becoming an Advocate for Phelan-McDermid Syndrome (PMS): Lacy and Avenly’s Story

Prior to her daughter Avenly’s diagnosis, Lacy Biram had never before heard of Phelan-McDermid syndrome (PMS). Currently, there are an estimated 2,200-3,000 people worldwide who have this rare condition. For…

Continue Reading Becoming an Advocate for Phelan-McDermid Syndrome (PMS): Lacy and Avenly’s Story