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Daily Archives: December 16, 2022

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A Phase 3 Study is Being Designed to Evaluate Vurolenatide for Short Bowel Syndrome
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A Phase 3 Study is Being Designed to Evaluate Vurolenatide for Short Bowel Syndrome

  • Post author:Jessica Lynn
  • Post published:December 16, 2022
  • Post category:Short bowel syndrome

  Clinical trials are a crucial part of learning more about certain diseases, as well as better understanding the impact of various therapeutic options. For example, a clinical trial can…

Continue Reading A Phase 3 Study is Being Designed to Evaluate Vurolenatide for Short Bowel Syndrome
DNA in Color: How Ronya Nelson is Working to Close the Diversity Gap in Genetics (Pt. 2)
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DNA in Color: How Ronya Nelson is Working to Close the Diversity Gap in Genetics (Pt. 2)

  • Post author:Jessica Lynn
  • Post published:December 16, 2022
  • Post category:Rare Disease

Before you read, don't forget to check out Part 1 of our interview! In Part 1, we discuss Ronya's story, genetic counseling, and why she chose to launch DNA in Color.…

Continue Reading DNA in Color: How Ronya Nelson is Working to Close the Diversity Gap in Genetics (Pt. 2)
Von-Hippel Lindau Disease: Finding Hope in a Clinical Trial
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Von-Hippel Lindau Disease: Finding Hope in a Clinical Trial

  • Post author:Patient Worthy Contributor
  • Post published:December 16, 2022
  • Post category:Timely/von Hippel-Lindau Syndrome

“I spent the majority of my life fearing the weight of VHL will eventually crush me, but thanks to this drug trial, not only do the rest of my fellow…

Continue Reading Von-Hippel Lindau Disease: Finding Hope in a Clinical Trial
Promising Gene Therapy Seeking Approval to Treat Advanced Gaucher Disease

Promising Gene Therapy Seeking Approval to Treat Advanced Gaucher Disease

  • Post author:Rose Duesterwald
  • Post published:December 16, 2022
  • Post category:Gaucher Disease

According to a recent article featured in Biospace, researchers found substantial evidence of a biochemical correction after treating an eleven-year girl for Gaucher Disease. This is the first pediatric case…

Continue Reading Promising Gene Therapy Seeking Approval to Treat Advanced Gaucher Disease
Rare Classroom: Takayasu’s Arteritis
source: shutterstock

Rare Classroom: Takayasu’s Arteritis

  • Post author:James Moore
  • Post published:December 16, 2022
  • Post category:Takayasu's Arteritis/Takayasu’s Arteritis

Welcome to the Rare Classroom, a new series from Patient Worthy. Rare Classroom is designed for the curious reader who wants to get informed on some of the rarest, most…

Continue Reading Rare Classroom: Takayasu’s Arteritis

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Rethinking What It Means to Live With Acromegaly


Illustration of mentor program members


The Let’s Chat CAR T One-on-One Mentor Program: Speaking with Someone Who Understands What You Are Going Through

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