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Daily Archives: December 27, 2022

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24-Year-Old Jordan Shares Experiences with Crohn’s Disease
Source: Pixabay.com

24-Year-Old Jordan Shares Experiences with Crohn’s Disease

  • Post author:Jessica Lynn
  • Post published:December 27, 2022
  • Post category:Crohn's disease

  When Jordan Lambropoulos was younger, she seemed to always be ill. She struggles to remember a time in her childhood where she would characterize herself as “healthy.” Even doctors…

Continue Reading 24-Year-Old Jordan Shares Experiences with Crohn’s Disease
National Organization of Rare Disorders: Raising Awareness of Rare Disease Day 2023
source: pixabay.com

National Organization of Rare Disorders: Raising Awareness of Rare Disease Day 2023

  • Post author:Rose Duesterwald
  • Post published:December 27, 2022
  • Post category:Rare Disease

  Do you wish to be heard? Recently PR Newswire announced that on the 28th of February 2023, NORD and the worldwide community of rare disorders will be raising awareness…

Continue Reading National Organization of Rare Disorders: Raising Awareness of Rare Disease Day 2023
A Holiday Confession: Making Exceptions the Rule Part 2

A Holiday Confession: Making Exceptions the Rule Part 2

  • Post author:Patient Worthy Contributor
  • Post published:December 27, 2022
  • Post category:Ehlers-Danlos Syndrome/Rare Disease

To read part 1 of Nikole's Holiday Confession, click here. I feel guilty when my limitations force others to have to alter their holiday expectations. Like, how do I tell…

Continue Reading A Holiday Confession: Making Exceptions the Rule Part 2

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