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Daily Archives: January 27, 2023

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How do we Move Beyond Pain and Suffering?

How do we Move Beyond Pain and Suffering?

  • Post author:Tom Seaman
  • Post published:January 27, 2023
  • Post category:Dystonia

We have all at one time or another experienced pain and suffering of some kind. I sure have, living with dystonia for over 20 years, the first 5 of those years being…

Continue Reading How do we Move Beyond Pain and Suffering?
Woman Warns Others about Necrotizing Fasciitis After Contracting it on Vacation
Source: Pixabay

Woman Warns Others about Necrotizing Fasciitis After Contracting it on Vacation

  • Post author:Jessica Lynn
  • Post published:January 27, 2023
  • Post category:Necrotizing fasciitis

25-year-old Maia Stock was excited at the chance to get away from snowy Canada and bask in the warmth of the Puerto Vallarta sun—relaxing at the resort, swimming in the…

Continue Reading Woman Warns Others about Necrotizing Fasciitis After Contracting it on Vacation
Azeliragon for Glioblastoma Earns Orphan Drug Designation
https://pixabay.com/en/nerve-cell-neuron-brain-neurons-2213009/

Azeliragon for Glioblastoma Earns Orphan Drug Designation

  • Post author:Jessica Lynn
  • Post published:January 27, 2023
  • Post category:Glioblastoma

  Have you ever heard of Orphan Drug designation? This designation is granted by the U.S. Food and Drug Administration (FDA) to drugs or biologics intended to diagnose, prevent, or…

Continue Reading Azeliragon for Glioblastoma Earns Orphan Drug Designation
Model with Epidermolysis Bullosa Champions Self-Love and Body Positivity
geralt / Pixabay

Model with Epidermolysis Bullosa Champions Self-Love and Body Positivity

  • Post author:Jessica Lynn
  • Post published:January 27, 2023
  • Post category:Epidermolysis Bullosa

  Lucy Beall's parents were expecting a fairly normal and straightforward birth. But when Lucy was born, the entire room was shocked. She weighed just six pounds and her skin…

Continue Reading Model with Epidermolysis Bullosa Champions Self-Love and Body Positivity
Teen Athlete Shares Long QT Syndrome Journey
source: pixabay.com

Teen Athlete Shares Long QT Syndrome Journey

  • Post author:Jessica Lynn
  • Post published:January 27, 2023
  • Post category:Long QT Syndrome

  2019 was an extremely difficult year for Jay Crow. In February of that year, Crow lost his mother Megan, who was just 33 years old, to heart failure. Just…

Continue Reading Teen Athlete Shares Long QT Syndrome Journey
Rare Classroom: Alternating Hemiplegia of Childhood
source: shutterstock

Rare Classroom: Alternating Hemiplegia of Childhood

  • Post author:James Moore
  • Post published:January 27, 2023
  • Post category:Alternating hemiplegia of childhood

Welcome to the Rare Classroom, a new series from Patient Worthy. Rare Classroom is designed for the curious reader who wants to get informed on some of the rarest, most…

Continue Reading Rare Classroom: Alternating Hemiplegia of Childhood

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