Congressman George Santos Apparently Lied About Helping Kids Living with Epidermolysis Bullosa
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Congressman George Santos Apparently Lied About Helping Kids Living with Epidermolysis Bullosa

According to a story from VICE News, Congressman George Santos was recently elected to Congress in the 2022 mid-term elections. Since then, his past has been placed under scrutiny, and…

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Embracing the “Tin Man Disease”: International Stiff Person Syndrome Awareness Day 2023 on March 15
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Embracing the “Tin Man Disease”: International Stiff Person Syndrome Awareness Day 2023 on March 15

Written by Meghan Bayer Stiff Person Syndrome Spectrum Disorder (SPSD) is an acquired, progressive, neurological spectrum disorder with features of an autoimmune disease that is believed to affect one to…

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After Battling Wilms’ Tumor, Stephanie is Cancer-Free at Age 9
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After Battling Wilms’ Tumor, Stephanie is Cancer-Free at Age 9

Stephanie Felix knew exactly what she wanted for her ninth birthday: to ring the bill at Beverly Knight Olson Children’s Hospital and signify that she was—officially!—cancer-free. When Stephanie was seven…

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Malta’s National Alliance for Rare Diseases Creates First Rare Disease-Focused Children’s Book
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Malta’s National Alliance for Rare Diseases Creates First Rare Disease-Focused Children’s Book

It’s incredibly important to raise rare disease awareness, spread education, and contribute to a more inclusive and equitable world. One of the best ways to start? Through children. Teaching the…

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Higher PLR and PHR Linked to Worse Systemic Sclerosis Activity
A case of systemic sclerosis. Source: Nevit Dilmen / CC BY-SA (https://creativecommons.org/licenses/by-sa/3.0)

Higher PLR and PHR Linked to Worse Systemic Sclerosis Activity

  Although the medical field has made significant strides over the years, there is still a lot we don’t know about the body. For example, what can we learn about…

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