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Daily Archives: April 21, 2023

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Study: Diseases of the Brain are Best Classified Based on Analyzing Gene Activity
source: shutterstock.com

Study: Diseases of the Brain are Best Classified Based on Analyzing Gene Activity

  • Post author:James Moore
  • Post published:April 21, 2023
  • Post category:Rare Disease

According to a recent study from McGill University in Canada, the new method for classification of brain illnesses has been identified. This study was led by Yashar Zeighami and compared…

Continue Reading Study: Diseases of the Brain are Best Classified Based on Analyzing Gene Activity
April 23rd is FOP Awareness Day!
rawpixel / Pixabay

April 23rd is FOP Awareness Day!

  • Post author:Jessica Lynn
  • Post published:April 21, 2023
  • Post category:Fibrodysplasia Ossificans Progressiva (FOP)

  On April 23, 2023, people around the globe will celebrate Fibrodysplasia Ossificans Progressiva (FOP) Awareness Day. April 23 marks the 17th anniversary of when scientists shared that they had…

Continue Reading April 23rd is FOP Awareness Day!
BrainStorm Files an ALS Drug Application Despite the FDA’s Protest

BrainStorm Files an ALS Drug Application Despite the FDA’s Protest

  • Post author:Rose Duesterwald
  • Post published:April 21, 2023
  • Post category:Rare Disease

The FDA has carried on a year-long disagreement with BrainStorm Cell Therapies, the developer of the experimental stem cell treatment called NurOwn. It is referred to as a personalized cell…

Continue Reading BrainStorm Files an ALS Drug Application Despite the FDA’s Protest
Succeeding in Spite of Charcot-Marie-Tooth Disease

Succeeding in Spite of Charcot-Marie-Tooth Disease

  • Post author:George Simpson
  • Post published:April 21, 2023
  • Post category:Charcot-Marie-Tooth disease

Written by Peter de Silva As a young person, I tripped and fell on a regular basis. Including during one little league baseball game which we might have won -…

Continue Reading Succeeding in Spite of Charcot-Marie-Tooth Disease
Rare Classroom: Stiff-Person Syndrome
source: shutterstock

Rare Classroom: Stiff-Person Syndrome

  • Post author:James Moore
  • Post published:April 21, 2023
  • Post category:Stiff Person Syndrome/Stiff-Person Syndrome

Welcome to the Rare Classroom, a new series from Patient Worthy. Rare Classroom is designed for the curious reader who wants to get informed on some of the rarest, most…

Continue Reading Rare Classroom: Stiff-Person Syndrome

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