Sudden Arrhythmia Death Syndromes Foundation (SADS) Educates FDA on Living with ARVC/D Through Externally-Led Patient-Focused Drug Development Meeting
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Sudden Arrhythmia Death Syndromes Foundation (SADS) Educates FDA on Living with ARVC/D Through Externally-Led Patient-Focused Drug Development Meeting

This press release was provided by the Sudden Arrhythmia Death Syndrome Foundation (SADS), a Patient Worthy partner organization. Key facts: ● Externally-led patient-focused drug development meeting (EL-PFDD) with FDA hosted…

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OI Has Led to More Than 82 Broken Bones for This 6-Year-Old
Chronic osteomyelitis in the clavicle. Sourced from: Shannonpercivalsmith / CC BY (https://creativecommons.org/licenses/by/3.0)

OI Has Led to More Than 82 Broken Bones for This 6-Year-Old

For many people, a broken bone would severely interrupt their life. But six-year-old Avery Balcazar has learned to live with it—even when it’s tough. As reported by CBC News, Balcazar…

Continue Reading OI Has Led to More Than 82 Broken Bones for This 6-Year-Old