The First Osteogenesis Imperfecta Patient Has Been Dosed in a Novel Phase 2/3 Investigation
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The First Osteogenesis Imperfecta Patient Has Been Dosed in a Novel Phase 2/3 Investigation

Ultragenyx Pharmaceutical Inc. has just announced the first dosing in their Phase 2/3 trial investigating setrusumab (UX143) as a treatment for osteogenesis imperfecta (OI) patients. This trial is called Orbit,…

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Study of the Week: Addressing Tendinopathy in Osteogenesis Imperfecta
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Study of the Week: Addressing Tendinopathy in Osteogenesis Imperfecta

Welcome to Study of the Week from Patient Worthy. In this segment, we select a study we posted about from the previous week that we think is of particular interest…

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Potential Osteogenesis Imperfecta Treatment Receives Rare Pediatric Disease Designation
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Potential Osteogenesis Imperfecta Treatment Receives Rare Pediatric Disease Designation

According to a story from BioSpace, the biopharmaceutical company Mereo BioPharma Group recently announced that its investigational therapy setrusumab has earned Rare Pediatric Disease designation from the US Food and…

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Company Developing Treatment for Osteogenesis Imperfecta Announces Successful FDA Phase 2 Wrap-up Meeting
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Company Developing Treatment for Osteogenesis Imperfecta Announces Successful FDA Phase 2 Wrap-up Meeting

According to a story from Financial Buzz, the biopharmaceutical company Mereo BioPharma Group plc recently announced that it has successfully concluded its Type B End-of-Phase 2 meeting with the US…

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This Just In: Patient Reported Experiences are Important for Research in Osteogenesis Imperfecta

What is osteogenesis imperfecta? Osteogenesis imperfecta (OI) actually refers to a group of four distinct rare disorders- OI Type I, II, III, and IV. They're all characterized by brittle bones which…

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She Sent Out Hundreds of Resumes, But Only Heard Back When She Hid Her Osteogenesis Imperfecta
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She Sent Out Hundreds of Resumes, But Only Heard Back When She Hid Her Osteogenesis Imperfecta

Shani Dhanda, 31, was at a loss-- she had sent hundreds and hundreds of job applications, and no one even interviewed her. The Birmingham woman stands at 3'10". She was…

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