Zachary Thomas Newborn Screening Act Could Introduce MPS I to Alabama’s Newborn Screening Panel
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Zachary Thomas Newborn Screening Act Could Introduce MPS I to Alabama’s Newborn Screening Panel

Zachary Thomas has been an advocate for the mucopolysaccharidosis type I (MPS I) community since he was born.  Newborn screening is a public health initiative that tests newborn babies for…

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Rare Community Profiles: Breaking Barriers: How Nicole and Emma Offer Hope Amidst a Dravet Syndrome Diagnosis
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Rare Community Profiles: Breaking Barriers: How Nicole and Emma Offer Hope Amidst a Dravet Syndrome Diagnosis

  Rare Community Profiles is a Patient Worthy article series of long-form interviews featuring various stakeholders in the rare disease community, such as patients, their families, advocates, scientists, and more.…

Continue Reading Rare Community Profiles: Breaking Barriers: How Nicole and Emma Offer Hope Amidst a Dravet Syndrome Diagnosis