In the realm of rare diseases, effective communication can be a formidable challenge, especially when symptoms impact speech and expression.

Remembering our very first post on May 19, 2015, Patient Worthy reintroduces “Hands Speak Louder Than Words in Rare Disease Video,” from Rare Disease Day 2015, which spotlights a compelling campaign that employs the universal language of sign and gesture to bridge communication gaps. By highlighting how individuals with rare diseases express themselves through their hands, this inaugural article not only raises awareness but also encourages empathy and understanding within the wider community. The video’s innovative approach exemplifies Patient Worthy’s decade-long mission to highlight alternative forms of expression and bring attention to the voices and stories of those in the rare disease community who are too often overlooked.

Looking ahead, Patient Worthy remains committed to amplifying these vital stories and advancing advocacy and awareness for the next ten years and beyond!