Launched in May 2015, Patient Worthy set out with a bold mission: to amplify the voices of rare disease and chronic illness patients, and to connect and inform a community often overlooked in mainstream healthcare conversations. Ten years later, the numbers tell a story of extraordinary growth, influence, and impact.
A Platform for the Rare and Unheard
From the beginning, Patient Worthy’s vision was clear, create a trusted, accessible space offering news, insights, and personal stories tailored to people affected by rare diseases and chronic conditions. Over the past decade, the platform has produced content covering more than 900 rare and chronic conditions, providing a vital resource for patients, families, and caregivers seeking up-to-date information and support. Go to our Partner’s Page here.
Content and Reach: By the Numbers
Patient Worthy’s editorial team has published over 22,000 articles since its inception. These pieces range from the latest research breakthroughs and clinical trial news to inspiring patient stories and practical advice for daily living. This wealth of content has not gone unnoticed; the site has attracted over 4.2 million pageviews and welcomed more than 3.3 million unique users from around the globe.
Such reach is a testament not only to the quality and relevance of the information provided but also to the pressing need for credible resources in the rare disease community. For many, Patient Worthy has become a first stop for learning about diagnoses, finding community, and discovering up-to-date research.
A Digital Footprint That Spans the Globe
Patient Worthy’s impact goes far beyond its website. With the launch of dynamic and far-reaching social media campaigns in May 2022, the organization has tapped into the power of digital networking and storytelling. These campaigns have generated staggering results: over 427 million impressions and over 95.4 million unique users reached. With 50,000+ daily users across all platforms, Patient Worthy has established itself as a vital resource and rallying point for the rare disease community in the digital age.
Building Partnerships and Advocacy
A cornerstone of Patient Worthy’s success has been its collaborative spirit. Over the past ten years, the platform has partnered with more than 100 advocacy organizations. These partnerships have enabled deeper community engagement, expanded access to critical resources, and helped amplify advocacy and awareness campaigns, ultimately driving meaningful change for patients and families. Patient Worthy’s presence at over 50 national and global conferences further demonstrates its commitment to advocacy, education, and staying at the forefront of rare disease conversations worldwide.
Amplifying Patient Voices Through Podcasting
In addition to its written content, Patient Worthy has embraced new media to reach wider audiences. Its award-winning podcast has achieved over 18,000 downloads, offering listeners firsthand accounts from patients, caregivers, researchers, and advocates. The podcast’s success highlights Patient Worthy’s commitment to innovative storytelling and accessibility, bringing rare disease conversations directly to earbuds around the world.
Recognition and Community Impact
Beyond the numbers, Patient Worthy has earned a reputation for integrity, empathy, and impact. The platform has been recognized with awards for its podcast and praised for its dedication to patient-centric journalism. Most importantly, feedback from readers and partners underscores its real-world value: providing hope, connection, and empowerment to those navigating the challenges of rare and chronic illnesses.
Looking Ahead
As Patient Worthy celebrates its 10th anniversary, its mission is more vital than ever. The rare disease community faces ongoing challenges, delayed diagnoses, limited research, and access to care among them, but also unprecedented opportunities for collaboration and innovation. Patient Worthy remains committed to evolving with the needs of its audience, expanding its content, partnerships, and platforms to ensure every rare voice is heard.
