In our second installment from our series of reports provided by our partner TREND Community, we are going to be focusing on a different condition over four weeks. This week we bring to you TREND’s launch report summarizing the IgG4-RD community analysis showcasing the themes discussed over social media in 2024. To read week 1’s report on Myasthenia Gravis, click here.
TREND Community is a community-powered digital analytics company that turns the conversations of rare and chronic disease
communities into actionable insights. With the help of our community stakeholders, our AI engine, Krystie™, turns real-world
discussions into insights that can spark broader understanding and therapeutic progress. Patient Worthy is grateful to TREND Community for the permission to share this information.
IgG4-related disease (IgG4-RD) is an immune-mediated condition, meaning that it involves the occurrence of disease in organs as the result of an abnormally regulated immune system. Some patients with IgG4-RD have disease in only one organ. Others, however, have diseases that affect multiple organs at the same time. It is not unusual for disease to affect anywhere between two to six organs. The following organs are often involved in IgG4-RD: (1) meninges, (2) orbits, (3) lacrimal glands, (4) major salivary glands, (5) thyroid gland, (6) lungs, (7) aorta, (9) kidneys (10) pancreas, (11) bile ducts.1
TREND Community is a community-powered digital analytics company that turns the conversations of rare and chronic disease communities into actionable insights. Our analytics engine, Krystie™, enables TREND to identify conversations that tend to be prevalent in social media. After isolating conversations within domains of interest such disease burden, management, mental health, TREND leverages a variety of analytical techniques to characterize the language and emotions associated with patient experiences and perspectives.
This report showcases the most recent themes discussed in a newly launched social media community, IgG4-RD Connect, dedicated to supporting those living with IgG4-RD. The goal is to amplify the voices of those living with this condition to shed light on their experiences to drive action and improved outcomes. To join the community, please click on the QR code above. We are very grateful to our partner, Amgen, for its support. We also have been partnering with the team at Global Healthy Living Foundation (GHLF) and we appreciate their time and efforts as well.
