Mosaic Variegated Aneuploidy (MVA) syndrome is an ultra-rare genetic condition. In people with MVA, some cells have an unusual number of chromosomes—the structures that carry genetic information. The condition can affect growth and development and is associated with an increased risk of certain cancers. Fewer than 50 cases have been reported worldwide, and there is no cure.
For families, an MVA diagnosis can bring many unanswered questions. Research and specialist knowledge are limited, and families may struggle to find information, appropriate support and a clear path for care.
Jonathan Bracey knows that uncertainty personally. As a father of a child affected by MVA, he founded MVA Society to connect families, support research and help improve the care available to people with the condition. Now, QuickSTAT is joining the effort through a global fundraising and awareness campaign.
The campaign’s first major milestone will be November 19, 2026, the inaugural MVA Awareness Day, organized by MVA Society. QuickSTAT employees across the company’s international network will mark the day with local fundraising events. The partnership aims to help families find one another and support research into potential treatments.
“When a family receives a diagnosis as rare as MVA, they can be left wondering where to turn and who might have answers,” Bracey said. “Bringing families and researchers together can be a lifeline.”
Bracey has worked with QuickSTAT for nearly 20 years through his role at Tanner Pharma Group, which QuickSTAT supports with global medicine logistics. He said the company’s involvement with MVA Society is meaningful to him personally.
“QuickSTAT is bringing its people together around the world to help us connect ours,” he said. “That is incredibly powerful.”
Michael Sweeney, executive vice president of QuickSTAT, said the partnership is intended to turn awareness into practical support. “Families affected by MVA should know they are not alone,” he said. “We want to help fund research that could lead to new treatments and build greater visibility for the MVA community.”
Bracey said the work must continue beyond a single awareness day. “MVA isn’t something families face for just 24 hours,” he said. He hopes the collaboration will build on an international research conference held at Great Ormond Street Hospital in September, helping the Society reach more families and advance research over time.
About MVA Society
MVA Society is a charity dedicated to supporting people and families affected by Mosaic Variegated Aneuploidy syndrome. It funds research, provides information and advocacy, and works to build a community for families navigating the condition.
The Society is also working toward an agreed MVA treatment and support pathway with the UK National Health Service, with the aim of creating a clearer route for families after diagnosis and a model that could be adapted internationally.
For more information, visit mvasociety.org. For interviews, images or further information, contact Natalie Trice at [email protected].
About QuickSTAT
QuickSTAT provides time-critical logistics for the healthcare and life sciences industries, including support for clinical trials and healthcare supply chains. The company operates in more than 190 countries and has approximately 480 employees. QuickSTAT is part of the Quick Group, a Kuehne+Nagel company, headquartered in Staines, United Kingdom.
