Welcome back to Editor’s Choice Patient Worthians!
This week, a PW Contributor told a love story about how her husband’s bipolar disorder helps her manage her rare disease. We also have an astounding interview with one of cystic fibrosis’ fabulous warriors.
We have DMD drug news this week, in addition to info on a spinal muscular dystrophy drug.
So sit back and enjoy this week’s Editor’s Choice!
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My Saving Grace: How My Bipolar Husband Was the Best Thing for My Cervical Dystonia
PW Contributor Amber is living with cervical dystonia.
This Valentine’s Day, she talked about how her hubby helps her on a daily basis, in part because of his bipolar disorder.
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The Irish Fight for Orkambi Cystic Fibrosis Treatment
CF patient and advocate Jillian McNulty has access to a life-saving drug that has yet to be approved in her country.
Now, she’s fighting for others in Ireland to get that same opportunity, to live longer, healthier lives.
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DMD Drug Sales Halted Amid Controversy
Amazingly, the FDA recently approved a drug for Duchenne muscular dystrophy treatment.
A massive snag for US citizens is pricing. Read more here.
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FDA Approves New Drug for Children and Adults with SMA
Good news for those living with spinal muscular atrophy.
The first combative treatment for SMA has been approved by the FDA for both adults and children! Read more.
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