New Chronic Mascot? Meet #SpoonieShark!
Recent twitter developments in the Chronic community have involved the possible discovery of a new mascot. Karl Austin (@Porkchop275) came across a picture of a shark, and after determining that…
Recent twitter developments in the Chronic community have involved the possible discovery of a new mascot. Karl Austin (@Porkchop275) came across a picture of a shark, and after determining that…
Charis is a Californian, advocate, activist, avid biker, blogger, and model. She was awarded the 2014 Progress in Policy Award by the Arthritis Foundation, Pacific Region last December for her efforts…
Anyone diagnosed with a chronic illness has two choices. Option 1: Accept it, live life idly, and wait to meet your maker. OR Option 2: Accept it, learn what the…
1. Rare diseases tend to come with long, difficult names. For the many people who are unfamiliar with them, they can be a mouthful and you may have to repeat…
Amanda struggled for years to understand the pain and swelling that she kept experiencing. Her doctors couldn't figure out was wrong and she never knew why her throat would sometimes…
You can lead a healthier lifestyle and help decrease some of your A.S. symptoms and frequency of flare ups by following these steps. 1. Exercise [iframe src="http://giphy.com/embed/NnwBN2NdkVx5K" width="500" height="237" frameBorder="0"…
Sudden HAE attacks can result in hospitalization or a few days in bed at home; forcing many patients to miss work or school.A study was conducted in Germany, Denmark, and…
Meet Amanda! Amanda’s vlog (video blog), ShAMANDAgans, helps her keep in touch with friends and family and share her story. She’s an ambitious and cheerful graduate student; going to…
How did CVID patients earn their stripes? Zebras are viewed as unique. They are only found in limited locations with specific environments; they flaunt stripes that are iconic to their…
Patients with Ankylosing Spondylitis can suffer terrible backaches. Heating pads are an easy option to help increase blood flow and alleviate some of the pain, at least temporarily. Electronic heating pads…
Pills and Parfaits: How probiotics could make living with CVID a little easier. Between the far-too-frequent infections associated with CVID and the reoccurring gastrointestinal issues, many patients find themselves on…
5 Questions you’re tired of hearing when you have CVID... “So you have respiratory AND digestive issues?” Yes. Both. Trust me I’d pick one if I could. “…