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Living with a chronic health condition is sometimes reminiscent of the plight of Sisyphus, a king from Greek mythology. Sisyphus was king of Ephyra who was punished for chronic deceitfulness…
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Keeping Hope Alive When Living with a Chronic Health Condition
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If you have dystonia and chronic pain like I do, or one of many other thousands of health conditions, or just dealing with some tough life situations...you are not alone.…
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Making Better Choices When We Are in Pain and Suffering
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If you have read my books or articles, you have probably noticed that I talk about self-care quite a bit. I think self-care is extremely important for anyone, whether they…
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Can We Go Too Far with Self-Care?
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“You have dystonia” are three words that can be very confusing and frightening. Receiving the news that you have any chronic condition can bring out a lot of emotions. People…
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The Dystonia Diagnosis and Prognosis
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The other day I was speaking with a coaching client who suffers with a chronic health condition called dystonia, which is accompanied by chronic pain. I also live with dystonia…
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A Quick Mindfulness Tool to Find Peace from Stress and Pain
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I have lived with chronic pain from dystonia, a neurological movement disorder, for 23 years. The first 5 years my symptoms were so severe that I was barely able to…
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Filling the Void That Pain and Chronic Illness Take from Our Lives
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Most of us have heard of the fight-or-flight stress response. It becomes activated when we believe there is a chance we can outfight or outrun real or perceived danger and…
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Do You Live in Protection Mode Because of Your Pain?
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Most people have probably heard the saying, “change your thoughts, change your life.” There is great truth to this because how we think can significantly impact our mental and physical…
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The Power of Positive Thoughts on Our Health
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How one deals with adversity is very unique to the situation and the individual. I have faced great adversity at different times in my life, some of which I handled…
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How Can We Better Adapt to Adversity?
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If you have a health condition where you are misunderstood and perhaps judged by others for how you live your life to battle your symptoms, I invite you to read…
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Please Don’t Assume How Someone Feels Based on Appearance
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Anxiety is the apprehension, uncertainty, and fear one feels when anticipating a threatening event or situation, whether the threat is real or imagined. It is often accompanied by restlessness, problems…
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Strategies for Anxiety and Panic Attacks
Life is ever evolving so it is important to remember that the storms in our lives do not always last forever. When I developed dystonia in 2001, I lost everything I was…
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Finding Meaning and Purpose in Our Pain and Suffering
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If you have read my books, seen my blogs, or watched my videos, you know that I live with a neurological movement disorder called dystonia, which I've had since 2001.…
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A Visual Tip to Slow Down and Not Over Do it and Hurt Yourself More
September is Dystonia Awareness Month, so I want to share a little about it and how it impacts those of us who live with it. Please share this with your…
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September is Dystonia Awareness Month What is Dystonia and What Does it Feel Like?
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I have lived with chronic pain from a neurological movement disorder called dystonia for over 20 years. Chronic pain does not follow any rules, and after multiple beatings, we can lose our…
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Be Kind to Your Pain. It’s Crying for Your Attention
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Having lived with chronic pain from dystonia for over 20 years, I spent most of that time focused on treating the physical symptoms. This has been very important and helpful,…
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Understanding and Improving Our Stress Response to Reduce Pain and Suffering
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If you live with any form of pain, I’m hoping the following information will be of help. Many of us look at pain the wrong way that exacerbates our problem,…
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How We Can Relate More Effectively to Our Pain
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On April 26th, I had the honor of speaking at the American Brain Foundation’s Commitment to Cures fundraising dinner during the American Academy of Neurology annual convention in Boston. I…
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Living with Dystonia – A Story of Overcoming Adversity
In a word, nothing. In two words, don’t panic. In two other words that are the same but are more positive and action oriented…be calm. Let me explain…when we experience…
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What’s the Best Thing We Can do When We Are in Pain?
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I have lived with dystonia (a neurological movement disorder) and chronic pain for over 20 years. The very active life prior to dystonia is night and day compared to the forced sedentary…
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How Photography Helps Take my Mind off my Pain from Dystonia
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The other day I read a post in a dystonia support group that is similar to something I see and hear very often. I’m sure you have as well, and…
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Managing an Overly Stimulating Environment to Protect our Health
We have all at one time or another experienced pain and suffering of some kind. I sure have, living with dystonia for over 20 years, the first 5 of those years being…
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How do we Move Beyond Pain and Suffering?
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Having lived with chronic pain and involuntary muscle contractions from a neurological movement disorder called dystonia since 2001, I felt defeated many times. But I am still here battling every day… and…
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How Resilient are you Living with Rare Disease? Probably more than you Think
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Chronic pain reminds me of a bully that picks on kids in the schoolyard every day. Like the bully, chronic pain does not follow any rules and after multiple beatings,…
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We Have to Stop Beating Ourselves up When We Are in Pain
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I love quotes. Some of them I read or hear and they go in one ear and out the other. Those that really resonate stick with me and help change…
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Thanksgiving Quotes We Can Use All Year Long