When we are faced with a limiting health issue where performing “simple” everyday activities becomes a challenge, our self-confidence and self-worth can dwindle. This can happen with any health condition…
Continue ReadingTips for Becoming More Self-Empowered When Living with a Chronic Health Condition
This is an interview I did with Dr. Carly Hudson on the Healing Ground Movement podcast discussing my life with dystonia and chronic pain, as well as the various ways…
Continue ReadingHow Do You Cope With Chronic Physical Pain and Suffering?
If you have chronic pain like I do (mine is caused by a movement disorder called dystonia), or one of many other thousands of health conditions, or just dealing with…
Continue ReadingHow to Choose Better for Ourselves When We Are in Pain
Life is filled with endless ups and downs. The first 5 of my ongoing 20 years living with dystonia were pretty much nothing but down times. I experienced the most horrible pain…
Human beings are wired to run away from things that are painful and difficult. I sure as heck did the first 5 years of my dystonia diagnosis. It often seems that…
Continue ReadingTry as We May, We Can’t Hide From Our Pain Forever
Most of us have heard of the fight-or-flight stress response. It becomes activated when we believe there is a chance we can outfight or outrun real or perceived danger and…
Continue ReadingDo You Live in Protection Mode Because of Your Pain?
When we are faced with a limiting health issue where performing “simple” everyday activities becomes a challenge, our self-confidence and self-worth can dwindle. This can happen with any health condition…
Continue ReadingSelf-Empowerment Tips for Healthy Living with a Chronic Illness
Have you ever had a panic attack? If so, you know how terrifying they can be. I have had plenty and know exactly what they are like…torture! There is good…
Believe it or not, it wasn’t until final exams my freshman year in college that I heard the term “stressed out.” It just wasn’t used that often back then. Nor…
I think everybody would agree that stress is a challenge in their lives. Personally, I think we should take on the belief that no stress exists and that it is…
Continue ReadingStress is Like a Clogged Drain – Tips for Managing our Emotional Plumbing
How many of you find yourself rushing around and it’s causing you stress and pain? And if you already have pain, does it add to your pain? Are you trying…
When I think of anxiety, I think of the movie, Gremlins (1984). For those of you who have seen this movie, you know that feeding a gremlin after midnight turns…
Continue ReadingAre You Turning Your Gizmo into a Gremlin? Understanding and Managing Anxiety
I think it would be safe to say that everyone is afraid of something. Sometimes the fear is justified and sometimes not. In this article, I want to focus on…
Continue ReadingManaging Excessive Worry and Fear to Avoid Health Consequences
In 2015, I published my first book, Diagnosis Dystonia: Navigating the Journey. It is a combination autobiography, self-help, education book that provides treatment options, coping strategies, skills for daily living,…
Continue ReadingBeyond Pain and Suffering: Adapting to Adversity and Life Challenges
It goes without saying that change is not easy for most people. If life has been a certain way for many years and something alters the course of things, it…
For a lot of us, self-care is difficult. This is for a lot of reasons, some of which might be guilt, not enough time, putting others before ourselves, not sure…
Uncertain times may be the understatement of the year so far. When the news of COVID-19 (coronavirus) caught our attention, there were a lot of people frozen in disbelief and…
Continue ReadingFinding Perspective in Uncertain Times with COVID-19
I recently had the pleasure of being interviewed by Sunshine Mugrabi about how I transformed my life over the past 20 years in the face of immense pain and suffering…
Continue ReadingHow to Find Meaning and Purpose Even When You’re Suffering: Q&A with Tom Seaman, Health Coach
In another article I wrote for Patient Worthy, I talked about the emotional pain of “victim mentality” when faced with a health or other life challenge. In this article, I…
Continue ReadingReleasing the Past to Work Through Current Life Challenges
People often tell me how upbeat and positive I am, despite living with pain from dystonia all day, every day for the last 20 years. I would say this is accurate…
This interview was originally published on the AMADYS website I was recently interviewed by Matthieu Creson for AMADYS to share my experience living with dystonia for nearly 20 years, as…
Continue ReadingAMADYS Interview with Tom Seaman and Matthieu Creson: Living with Dystonia for 20 years.
When I was 30, I developed a painful neurological movement disorder called dystonia. It totally turned my life upside down where I went from being fully functional and very active,…
Continue ReadingThe Impact Stress and Emotions Have on our Health
Sign Up With a Patient Worthy Account and Share Your Rare Story
- OR -
Sign Up For Our Patient Panel
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.