This is an interview I did with Scott Davidson who has a podcast called Living Adaptive, where he interviews people that have adapted to significantly difficult situations in their lives.…
Continue Reading
Mindset towards Adapting: Tom Seaman and Scott Davidson Discuss Chronic Illness and Accepting Change
https://pixabay.com/en/daisies-flower-spring-plant-nature-388946/
In 2001, I developed severe chronic pain from a neurological movement disorder called dystonia. My life before and after dystonia are as different as night and day. I went from a very active lifestyle to…
Continue Reading
I Needed to Accept Change to Better Cope with Dystonia
https://pixabay.com/en/daisies-flower-spring-plant-nature-388946/
I live in North Carolina. where we were recently hit with a powerful hurricane that caused a lot of damage. Many trees fell on and around my house. One tree…
Continue Reading
What Nature and Chronic Pain Teaches Us About Resilience
This is a video presentation I created called Living Well with Dystonia. It shares some of the many things I have learned in my almost 20 years of living with…
Continue Reading
Living Well with Dystonia
If you have a health condition where you are misunderstood and perhaps judged by others for how you live your life to battle your symptoms, I invite you to read…
Continue Reading
Please Don’t Judge How We Feel Based on How We Look
Source: Pixabay
If you suffer with anxiety, you know just how crippling it can be. Anxiety* is actually a natural response to our environment that is designed to protect us from danger.…
Continue Reading
When Anxiety Attacks
Pain is one of the most intrusive things we can experience because it impacts nearly every aspect of our lives, especially if it is chronic. As Bonnie Prudden said, “Pain,…
Continue Reading
The Real Impact of Pain That People Cannot See
Source: Pixabay.com
How someone deals with adversity is very unique to the situation and the individual. I have faced great adversity at different times in my life, some of which I handled…
Continue Reading
Adapting to Adversity
Chronic pain has a sinister way of impacting practically every aspect of our lives. One major area is our social life. Since chronic pain is often misunderstood by others and…
Continue Reading
The Impact of Chronic Pain on Social Life
Source: Pixabay
Human beings are visual creatures, so we often associate how someone feels based on how they look and act. Sadly, this is very short sighted. Many people live with life…
Continue Reading
How You Look is Not a Measure for How You Feel
Source: Pixabay
I have lived with chronic pain from a neurological movement disorder called dystonia for nearly 20 years. It reminds me of the bully who picks on kids in the schoolyard…
Continue Reading
Don’t Beat Yourself Up. Chronic Pain Does that Enough.
Source: Pixabay
Happy November! This is one of my favorite times of the year with the clean, crisp air and the leaves changing color. However, I am not a fan of the shorter…
Continue Reading
Managing Seasonal Affective Disorder (SAD)
Tom and some regulars in the support group
I know many people who would love to go to a local support group, but there either isn’t one in your area or you are not well enough to attend.…
Continue Reading
The Value of a Support Group
When the pain and muscles contractions from my dystonia were at their worst for me (see above), it significantly limited what I could do. For years I characterized dystonia and…
Continue Reading
Overcoming Victim Mentality When Living with Chronic Illness
Fred and me. Fred helped diagnose me with dystonia many years ago before anyone else knew what it was and I was still doctor shopping. He has dystonia also.
When we are faced with a limiting health issue where performing "simple" everyday activities becomes a challenge, our self-confidence and self-worth can dwindle. This can happen with any health condition…
Continue Reading
Self-Empowerment Tips for Healthy Living
Did you know that we have chemicals in the brain as powerful as drugs for pain, depression, anxiety, and other conditions? Among them are neurotransmitters called endorphins, serotonin, oxytocin, and…
Continue Reading
Our Mind: As Powerful Any Drug
After the diagnosis/Self harming thoughts After being diagnosed with dystonia and learning it is not a temporary problem (or if you have lived with it for years and are feeling…
Continue Reading
After the Diagnosis
Pixabay
Life is filled with endless opportunities. Sometimes the opportunities, or silver lining, are hard to see when we have problems with our health, finances, family, or career, but they exist.…
Continue Reading
Hidden Opportunities Within Our “Problems”
Most people have probably heard the saying, “change your thoughts, change your life.” There is great truth to this because how we think can significantly impact our mental and physical…
Continue Reading
The Power of Positive Affirmations
Pixabay.com
There is currently no cure for most chronic health conditions so treatments are focused on reducing symptoms. I live with a condition called dystonia, a painful neurological movement disorder. Like…
Continue Reading
Don’t Ask: Does it Work?
Dystonia is a neurological movement disorder characterized by uncontrollable, involuntary muscle spasms and contractions, causing repetitive movements, twitching, twisting, and/or abnormal postures. Muscle contractions can be sustained or intermittent and…
Continue Reading
What Does Dystonia Feel Like?
While I truly believe that people are well-intentioned, their opinions and comments often miss the mark when it comes to what we experience living with dystonia, or any other chronic…
Continue Reading
Helpful Suggestions or Harsh Judgement? Living with Rare Disease
Pixabay.com
Living with a chronic health condition that dramatically alters one’s life can be very confusing, scary, and lonely. I lived in this mental misery for years when I developed dystonia,…
Continue Reading
Unwelcomed Advice After My Dystonia Diagnosis
In the summer of 2001, my neck muscles began to involuntarily contract, causing my head to pull to the right. I had no idea what was wrong. My doctors were…
Continue Reading
Losing 150 lbs and Living with Dystonia
Living with dystonia is sometimes reminiscent of the plight of Sisyphus, a king from Greek mythology. Sisyphus was king of Ephyra who was punished for chronic deceitfulness and condemned…
Continue Reading
Hope: My Dystonia Survival Tool