No matter how mentally flexible or strong you are, we all have a breaking point. Unfortunately, many of us tend to push ourselves as far as possible until we reach…
Sudden. Intense. Pain. It feels like a burning sensation. Your toes, or your fingers, or your knees feel engulfed in flames. There is pressure, and there is pain. Where did…
Sometimes… just sometimes, dads get a bad rap. Think about all the mommy blogs out there to empower, to share, and even at times, to vent about the life and…
La Ignorancia: Falta de conocimiento, aprendizaje, o información. Descuidado: No tener preocupación o cuidado, no prestar atención. Al tratar de encontrar las palabras perfectas para describir el reciente accidente de…
Después de ser diagnosticado con una enfermedad rara, a menudo hay un sinfín de preguntas que siguen: ¿Qué voy a hacer? ¿Qué es esta enfermedad? ¿Es curable? Y la pregunta…
¿Qué pasa si vives con dolor crónico todos los días - y no sólo pequeños dolores, pero dolor de nivel 8 en una escala de 1 a 10? Kirah DeCarlo…
Este es el escenario: una mujer y un hombre entran a la sala de emergencia con los mismos síntomas. Ambos tienen un terrible dolor en la región abdominal. El hombre…
Happy Friday Patient Worthians! Do you wish you can take a day off from your rare disease? What about when it seems like it's getting to be too much and…
There’s a CRPS clinical trial being listed on Craigslist. Not kidding. You can check it out here. Now, am I the only one who finds that really odd? When I…
If you suffer from complex regional pain syndrome, or CRPS, you know the value of effective pain management--because without it, life kind of grinds to a halt. Unfortunately, many of…
Life can be overwhelming, especially when living with complex regional pain syndrome (CRPS). The continual pressure to look good, to perform well, and to compete for wealth and affection creates…
Has your physical therapist been suggesting standing like a superhero as a cortisol-lowering treatment for your complex regional pain syndrome (CRPS)? Well, s/he might just be slumping her or his…
Do you live with Complex Regional Pain Syndrome (CRPS)? Are you looking for inspiration from someone with experiences like yours? Well… Katelyn (Katie) O’Leary, a 27-year old Indiana native living…
Not everyone can appreciate a sarcastic sense of humor. And for whatever reason, this dry sense of humor usually comes with a warning. So this is yours. Please be advised…
It has been said that there is strength in numbers, and we are much stronger together! That’s probably why I connected with Shira Strongin, a young teen who lives with…
Since I was very young, I have been mesmerized by the athletes in the Olympic games. The power, the grace, the dedication, and the celebration. I remained glued to my TV for…
Besties are… well… the best! Lauren Smith just earned a Best of the Besties award for friendship by deciding to run in the Marathon de Paris 2017 on April 9,…
'Tis the season to help those in need. Complex regional pain syndrome, or CRPS, can be so severe, it drives some people to desperate ends. It usually starts with an…
For anyone living with severe chronic pain from Complex Regional Pain Syndrome (CRPS), the best possible gift they could receive—short of a cure—would be a good treatment. To date, however,…
When you’re dealing with the intense, unrelenting pain of complex regional pain syndrome (CRPS), patience can wear more than a wee bit thin. Also, it’s hard to concentrate when dealing…
Inspiration is important because it provides us with a glimpse of the fact that we can be great. But inspiration is not what fuels change, inspiration is fleeting. It’s what…
When you have a rare disease like complex regional pain syndrome (CRPS), sometimes it seems like doctors don't know anything about it. What's worse, it seems like a lot of…
I love chocolate. Who doesn't? Forget the chips and candy… chocolate is numero uno for me. Well, it turns out that there may be another wonderful thing about chocolately goodness:…
dolor colosal. hinchazón de mamut. Hipersensibilidad. Los cambios drásticos en la temperatura corporal. Imagínese estar en ese tipo de dolor todo el tiempo. Francamente, suena un poco como una pesadilla.…
Exercising with CRPS can be beyond difficult, but I’m sure everyone from your doctor to your mother has encouraged you to do it. Why? CRPS already causes you pain, and…
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