European Commission Grants Orphan Designation Designation for Investigative Achondroplasia Therapy
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European Commission Grants Orphan Designation Designation for Investigative Achondroplasia Therapy

Ascendis Pharma has just announced that their investigative therapy for achondroplasia called TransCon CNP has just received Orphan Drug Designation from the European Commission. This same designation has already been…

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“She’s a Happy Baby Since We’ve Been Home”: This Baby Born With Thanatophoric Dysplasia Finally Made It Home

As originally reported in Live 99.9; when Melissa and Chris Courson found out the baby they were expecting in a few months would be born with the rare thantophoric dysplasia,…

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After The Death of Their Daughter From Dwarfism, A Family Speaks Out About Early Infant Death
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After The Death of Their Daughter From Dwarfism, A Family Speaks Out About Early Infant Death

Mallory and Dave Holmes were excited. Like many couples, they were eagerly awaiting the birth of their first child. After 20 weeks of pregnancy, however, the couple received news that…

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Ellie Simmonds, Paralympic Champion, Receives Honorary Degree From Swansea University
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Ellie Simmonds, Paralympic Champion, Receives Honorary Degree From Swansea University

Ellie Simmonds is a dominate Paralympic swimmer having won five times in her 23-years and was honored locally for her success, reported Border Telegraph.  Just recently, she attended to a…

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