Scientists Have Identified Genes Involved in Hereditary Angioedema Acute Attacks

Researchers have carried out a study into the genetic mechanisms involved in hereditary angioedema acute attacks. They found that two genes, called uPAR and ADM, had a particularly strong influence.…

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The Rising Price of Prescription Medicine Disproportionately Affects Rare Disease Patients
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The Rising Price of Prescription Medicine Disproportionately Affects Rare Disease Patients

It may not be surprising news to find that the United States now pays more for prescription drugs than any other high-income country. This was not always the case however. Read…

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Study Testing Self-Administration of Hereditary Angioedema Treatment Shows Positive Results
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Study Testing Self-Administration of Hereditary Angioedema Treatment Shows Positive Results

According to a story from Rare Disease Report, a recent study indicates that the self-administration of Berinert, a drug used to treat hereditary angioedema, is effective and safe for patients…

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Living with Hereditary Angiodema: My Life was Changed in an Instant, Part One
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Living with Hereditary Angiodema: My Life was Changed in an Instant, Part One

From birth until my mid-thirties I was a very active person. I loved dancing West Coast Swing, doing yoga, and cooking large meals for my ‘Ohana. The word "'Ohana" describes…

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Treatment for Hereditary Angiodema Gets Marketing Approval From the EMA
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Treatment for Hereditary Angiodema Gets Marketing Approval From the EMA

According to a recent story from pm360online.com, the pharmaceutical company Shire announced that the marketing application for its drug product lanadelumab has gained approval from the European Medicines Agency (EMA).…

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