Narcolepsy – Page 7 – Patient Worthy

Hundreds of people living with narcolepsy gathered at the NN's 2015 Conference to make friends and learn something new. Source: Narcolepsy Network

Are YOU Going To The Narcolepsy Network’s Conference This Year?

Post author:Winnie Nash
Post published:March 14, 2016
Post category:Narcolepsy

Come one, come all! Well, mainly those who you live with narcolepsy... The annual Narcolepsy Network (NN) Conference is in the works, and this year, Judith Owens, MD, MPH, Associate in Neurology (and…

Editor’s Choice: Morgue Nightmare and D-Day

Post author:Patient Worthy Contributor
Post published:March 11, 2016
Post category:Lyme Disease Narcolepsy POTS Rare Disease

Welcome to this week's Editor's Choice! You won't believe this woman's story of waking up in a morgue because her rare disease wasn't recognized. And one of PW's contributors finally gets a…

Will There Ever Be a Cure for Narcolepsy?

Post author:James Ernest Cassady
Post published:March 11, 2016
Post category:Narcolepsy Rare Disease

As most people with narcolepsy are probably aware, current treatments are designed to help manage symptoms rather than treating the underlying cause of the condition itself. Recent advancements, however, have pinpointed…

Narcolepsy Awareness Month Video Series!

Post author:Rebekah
Post published:March 10, 2016
Post category:Narcolepsy

Patient Worthy is celebrating March as Narcolepsy Awareness Month! Narcolepsy is far too often misdiagnosed and left undiagnosed for years at a time. With more awareness will be more correct,…

Narcolepsy: Neglected and Potentially Deadly

Post author:Alisha Stone
Post published:March 10, 2016
Post category:Narcolepsy

March 12th, 2016 is Suddenly Sleepy Saturday, a day to help spread awareness about people living with narcolepsy. I’m heartened to learn about this campaign, because far too many Americans…

Are You Getting Enough Zzz’s? Living with Narcolepsy

Post author:Patient Worthy Contributor
Post published:March 9, 2016
Post category:Narcolepsy

above photo by Sandro Georgi Photography Throughout March, Patient Worthy is supporting the narcolepsy community in publishing all about living with narcolepsy and the #narcoleptictruth. The 2016 theme for Sleep Awareness…

The Dangers of Skipping Sleep

Post author:Patient Worthy Contributor
Post published:March 8, 2016
Post category:Narcolepsy

Sleep health is vital to living well and being "healthy". The effects of sleep deprivation are real and can be devastating. Check out this video from neuroscientist Dr. Claudia Aguirre via…

How Did This Woman With Cataplexy Wake Up in the Morgue?

Post author:Winnie Nash
Post published:March 8, 2016
Post category:Narcolepsy Rare Disease

Picture this: Little ol' you enjoying a night at the theater. Mid-movie, you drop to the ground, completely paralyzed. Your limp body looks lifeless; but you can still hear and…

Why Narcolepsy in The Military is a Terrible Idea

Post author:Farrah Fontaine
Post published:March 8, 2016
Post category:Narcolepsy

Narcolepsy and the military? Not so fast. It's pretty common knowledge that narcolepsy is one of those medical conditions that will prevent you from enlisting--and could very likely lead to…

How Did a Narcolepsy Video Absolutely Shock a Cynic?

Post author:Kiki Jones
Post published:March 7, 2016
Post category:Narcolepsy

Fine, I’ll be the first one to say it—I’m a cynic. Straight up. It’s a family trait so proudly established that when questioned by a very young Kiki about our…

Editor’s Choice: Rare Disease Day, Newly Diagnosed and Paleo Dieting

Post author:Patient Worthy Contributor
Post published:March 4, 2016
Post category:Cystinosis Narcolepsy Rare Disease

Happy Rare Disease Week friends! This week we have an exciting article on the first day of Rare Disease Week on Capitol Hill (though technically, the first day was at the…

How To Change Your Diet And Destroy Narcolepsy

Post author:Kiki Jones
Post published:March 4, 2016
Post category:Narcolepsy

Okay, you know what’s funny? I literally just wrote an article "The Paleo Diet and Narcolepsy: What You Need To Know" about a “Paleo Narco,” a young woman with narcolepsy…

The Beginning of Something Big For Narcolepsy Patients

Post author:Rebekah
Post published:March 4, 2016
Post category:Narcolepsy

above photo by Sandro Georgi Photography Imagine that your son was suddenly falling asleep all the time; around the house, at school, during dinner, and that when you took him to…

This Woman Shares The Truth About Living With Narcolepsy

Post author:Erica Zahn
Post published:March 3, 2016
Post category:Narcolepsy Rare Disease

If you're curious about narcolepsy from a first-person perspective, there's an awesome YouTube channel you should subscribe to. Sleepy Sarah Elizabeth is creating a video journal detailing her struggles with…

Narcolepsy 101: For the Newly Diagnosed

Post author:Patient Worthy Contributor
Post published:March 2, 2016
Post category:Narcolepsy

Here at Patient Worthy, we've written quite a bit about Narcolepsy. However, we can't help but think that taking a step back to answer some basic questions about the disease is…

The Paleo Diet And Narcolepsy: What You Need To Know

Post author:Kiki Jones
Post published:March 1, 2016
Post category:Narcolepsy

The Paleo Diet—which has the hunter-gatherer food aesthetic of fruits, vegetables, and lean proteins—has gotten a whole spectrum of attention. We’re talking everything from obsessed proponents to frantic debunkers, and all the…

How To Put A Guy With Narcolepsy In Danger

Post author:EmpatheticBadass
Post published:March 1, 2016
Post category:Narcolepsy

Way to go, Vice magazine/website! A young guy trying to live a normal life with narcolepsy needs a tightly-regulated, prescription medication—that also happens to be a hot club drug—to function.…

If a Man Falls Asleep in the Forest, Does Anybody Hear?

Post author:Erica Zahn
Post published:March 1, 2016
Post category:Narcolepsy

Dee Daud suffers from an extremely severe case of narcolepsy. Even walking his dog, which he tries to do three times a day, can turn into an emergency. He will…

These Are the Top 5 Reasons I Hate Clickbait

Post author:James Ernest Cassady
Post published:February 29, 2016
Post category:Narcolepsy

Son of a biscuit! I'm a little upset and I'll tell you why, but first I have a confession to make: I don't actually live with any of the conditions…

Amanda’s Story: With Narcolepsy, One is the Loneliest Number

Post author:Erica Zahn
Post published:February 29, 2016
Post category:Narcolepsy Rare Disease

Amanda Vasas has a special reason for wanting to elevate awareness about narcolepsy, a chronic sleep disorder she was diagnosed with at the age of 16. She doesn't want anyone else to…

Know Your Employment Rights: Narcolepsy is a Covered Condition

Post author:Erica Zahn
Post published:February 26, 2016
Post category:Narcolepsy Rare Disease

All of us have been there: you're at work and an important deadline is coming up--your boss is breathing down your neck, and your co-workers are micro-managing the project. It's…

20 canciones impactantes Acerca de enfermedades crónicas que te sorprendera

Post author:Patient Worthy Contributor
Post published:February 24, 2016
Post category:Dystonia Homozygous Familial Hypercholesterolemia Narcolepsy Rare Disease

Aquí en PatientWorthy, creemos que la risa puede ser la mejor medicina. Humor irónico es sorta lo nuestro. Pero para aquellos que ofenden fácilmente, o tal vez incluso moderadamente intolerante,…

You Might Have Narcolepsy IF…

Post author:Patient Worthy Contributor
Post published:February 20, 2016
Post category:Narcolepsy

On Date: Mon, 12 Sep 2005 20:55:24 -0000 Sleepymoon posted the following message to readers followed by 128 different versions of You Might Have Narcolepsy IF... Are we really…

Editor’s Choice: Heart Failure, “Escaping” Teens and more!

Post author:Patient Worthy Contributor
Post published:January 29, 2016
Post category:CAPS Dystonia Narcolepsy Rare Disease

You made it! It's the end of the week and time for yet another Editor's Choice post. What do heart failure and narcolepsy have in common? Do you have a…

source: pixabay.com

This Mom’s Narcolepsy Story Will Make You Hold Your Tongue

Post author:EmpatheticBadass
Post published:January 19, 2016
Post category:Narcolepsy Rare Disease

In the "Don't judge; you never know what someone's going through" department.... Oh. My. GAWD! This woman is awesome! Growing up, this young woman blogger, whom we'll call Ezzie, was…

Are YOU Going To The Narcolepsy Network’s Conference This Year?

Editor’s Choice: Morgue Nightmare and D-Day

Will There Ever Be a Cure for Narcolepsy?

Narcolepsy Awareness Month Video Series!

Narcolepsy: Neglected and Potentially Deadly

Are You Getting Enough Zzz’s? Living with Narcolepsy

The Dangers of Skipping Sleep

How Did This Woman With Cataplexy Wake Up in the Morgue?

Why Narcolepsy in The Military is a Terrible Idea

How Did a Narcolepsy Video Absolutely Shock a Cynic?

Editor’s Choice: Rare Disease Day, Newly Diagnosed and Paleo Dieting

How To Change Your Diet And Destroy Narcolepsy

The Beginning of Something Big For Narcolepsy Patients

This Woman Shares The Truth About Living With Narcolepsy

Narcolepsy 101: For the Newly Diagnosed

The Paleo Diet And Narcolepsy: What You Need To Know

How To Put A Guy With Narcolepsy In Danger

If a Man Falls Asleep in the Forest, Does Anybody Hear?

These Are the Top 5 Reasons I Hate Clickbait

Amanda’s Story: With Narcolepsy, One is the Loneliest Number

Know Your Employment Rights: Narcolepsy is a Covered Condition

20 canciones impactantes Acerca de enfermedades crónicas que te sorprendera

You Might Have Narcolepsy IF…

Editor’s Choice: Heart Failure, “Escaping” Teens and more!

This Mom’s Narcolepsy Story Will Make You Hold Your Tongue

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