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Narcolepsy

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Amazing Students at Colorado School are Smart AND Kind

Amazing Students at Colorado School are Smart AND Kind

  • Post author:Alisha Stone
  • Post published:January 13, 2016
  • Post category:Narcolepsy/Rare Disease

When I think back to my school days in the South during the 1960s and ‘70s, I’m still haunted by some of the crazy things that I witnessed. For example,…

Continue Reading Amazing Students at Colorado School are Smart AND Kind
This New Finding Spits at the Heart of Heart Failure
Possibly link found between narcolepsy and heart failure.

This New Finding Spits at the Heart of Heart Failure

  • Post author:Erica Zahn
  • Post published:January 12, 2016
  • Post category:Narcolepsy/Rare Disease

Researchers at Stanford University School of Medicine have discovered a gene that could possibly reduce the risk of cardiac issues, like heart failure. What's weird... it's the same gene, when mutated, that was…

Continue Reading This New Finding Spits at the Heart of Heart Failure
Narcolepsy Fried Her Brains. What You Need to Know.
geralt / Pixabay

Narcolepsy Fried Her Brains. What You Need to Know.

  • Post author:Alisha Stone
  • Post published:January 4, 2016
  • Post category:Narcolepsy/Rare Disease

In November 2015, PatientWorthy sounded off on an article that I really liked called: “A Day in the Life of a Narcoleptic” by Steven Jackson. I applauded (and still do)…

Continue Reading Narcolepsy Fried Her Brains. What You Need to Know.
Courage and Determination is Rewarded with $$$ in Students with Narcolepsy

Courage and Determination is Rewarded with $$$ in Students with Narcolepsy

  • Post author:Erica Zahn
  • Post published:January 1, 2016
  • Post category:Narcolepsy/Rare Disease

Some teenagers have trouble staying awake in class--but most of them have a fairly normal excuse: they stayed up too late. Then there are teens who actually do have a…

Continue Reading Courage and Determination is Rewarded with $$$ in Students with Narcolepsy
If You Love Dogs, You Need To Read This

If You Love Dogs, You Need To Read This

  • Post author:EmpatheticBadass
  • Post published:December 31, 2015
  • Post category:Narcolepsy/Rare Disease

So…. As a dog fanatic, reading the Wall Street Journal headline “Why Dogs are Some Scientists’ New Best Friends” gave me the heebie-jeebies at first. I’m the kind of person…

Continue Reading If You Love Dogs, You Need To Read This
Have Narcolepsy? New Drug Study for EDS Now Enrolling
Jazz phermaceuticals offers hope to those with EDS.

Have Narcolepsy? New Drug Study for EDS Now Enrolling

  • Post author:EmpatheticBadass
  • Post published:December 16, 2015
  • Post category:Narcolepsy/Rare Disease

Hey, want to know how to really ruin the day for someone living with excessive daytime sleepiness (EDS)? Just tell them “Oh, I get tired a lot too.” Apart from…

Continue Reading Have Narcolepsy? New Drug Study for EDS Now Enrolling

How to Classify Narcolepsy as an Autoimmune Disease

  • Post author:Erica Zahn
  • Post published:December 15, 2015
  • Post category:Narcolepsy/Rare Disease

If you have narcolepsy, excessive daytime sleepiness, and/or cataplexy, you know how hard it can be to function in "real-world" time. And while treatments have improved, there is still no…

Continue Reading How to Classify Narcolepsy as an Autoimmune Disease
How To Sink a Hole In One For Narcolepsy

How To Sink a Hole In One For Narcolepsy

  • Post author:Erica Zahn
  • Post published:December 8, 2015
  • Post category:Narcolepsy/Rare Disease

When you're competing in an important golf tournament, the last thing you want to worry about is narcolepsy and cataplexy associated with narcolepsy — but those are two very big…

Continue Reading How To Sink a Hole In One For Narcolepsy

What Causes Narcolepsy? A Look At the Science Behind the Headlines

  • Post author:Erica Zahn
  • Post published:December 7, 2015
  • Post category:Narcolepsy/Rare Disease

What's all this about taking a bite of an apple then falling into a deep sleep for years and years? That's what happened to Snow White, and as far fetched…

Continue Reading What Causes Narcolepsy? A Look At the Science Behind the Headlines
What You Absolutely Need To Know When Reporting On Narcolepsy
What you need to know when reporting on Narcolepsy

What You Absolutely Need To Know When Reporting On Narcolepsy

  • Post author:Lady Kehveen Abernathy
  • Post published:December 2, 2015
  • Post category:Narcolepsy/Rare Disease

Ever been put off by a headline, but felt compelled to read the post? Yup. That was me when I happened upon the article, A Day in the Life of…

Continue Reading What You Absolutely Need To Know When Reporting On Narcolepsy
Doh! Narcolepsy Just Isn’t that Funny, Even Homer Simpson Agrees!
The Simpsons accurately portray narcolepsy.

Doh! Narcolepsy Just Isn’t that Funny, Even Homer Simpson Agrees!

  • Post author:Erica Zahn
  • Post published:November 17, 2015
  • Post category:Narcolepsy/Rare Disease

It's unfair, but Hollywood thinks narcolepsy is funny. Over and over, characters suffering from the rare neurological disorder are portrayed as buffoons, falling asleep face down in their chicken soup,…

Continue Reading Doh! Narcolepsy Just Isn’t that Funny, Even Homer Simpson Agrees!
What’s App, Doc? Technology and Narcolepsy
Check out this new app for narcolepsy!

What’s App, Doc? Technology and Narcolepsy

  • Post author:James Ernest Cassady
  • Post published:November 16, 2015
  • Post category:Narcolepsy/Rare Disease

It's no secret that people are more dependent on technology than ever. We've got computers in our cars, TVs on our phones, and WiFi on our airplanes. It shouldn't be…

Continue Reading What’s App, Doc? Technology and Narcolepsy
Swine Flu and Narcolepsy: What Was the Link?

Swine Flu and Narcolepsy: What Was the Link?

  • Post author:Erica Zahn
  • Post published:November 11, 2015
  • Post category:Narcolepsy/Rare Disease

Back in 2009, a nasty strain of the flu, namely swine flu, raced around the globe knocking people down like bowling pins. The first reports of this new flu came out…

Continue Reading Swine Flu and Narcolepsy: What Was the Link?
8 Ways Caregivers and Friends Can Support People with Narcolepsy

8 Ways Caregivers and Friends Can Support People with Narcolepsy

  • Post author:Alisha Stone
  • Post published:October 21, 2015
  • Post category:Narcolepsy/Rare Disease

To all of the friends and families of people who have narcolepsy or symptoms of narcolepsy: LISTEN UP! In case you weren’t aware, narcolepsy is a serious and chronic, yet…

Continue Reading 8 Ways Caregivers and Friends Can Support People with Narcolepsy

20 Shocking Songs About Chronic Disease That Will Spill Your Coffee

  • Post author:Patient Worthy Contributor
  • Post published:October 20, 2015
  • Post category:Dystonia/Homozygous Familial Hypercholesterolemia/Narcolepsy/Rare Disease

Here at PatientWorthy, we think laughter can be the best medicine. Ironic humor is sorta our thing. But to those easily offended, or perhaps even moderately intolerant, we suggest you…

Continue Reading 20 Shocking Songs About Chronic Disease That Will Spill Your Coffee
Is “Safety” the Magic Word to Make Discrimination Legal?

Is “Safety” the Magic Word to Make Discrimination Legal?

  • Post author:Patient Worthy Contributor
  • Post published:September 14, 2015
  • Post category:Narcolepsy/Rare Disease

Whatever your disease is, you shouldn't let it hold you back...not when the government can do that for you! GobyTruckNews describes the story of three men with narcolepsy who applied…

Continue Reading Is “Safety” the Magic Word to Make Discrimination Legal?
Is This Smart Pill Too Good to Be True?

Is This Smart Pill Too Good to Be True?

  • Post author:Patient Worthy Contributor
  • Post published:September 8, 2015
  • Post category:Narcolepsy/Rare Disease

If someone offered you a pill that could make you temporarily smarter, would you take it? Well sure, why not? Even if it was just long enough to pass that…

Continue Reading Is This Smart Pill Too Good to Be True?
City Stunned By Horrific Accident. Is Narcolepsy To Blame?

City Stunned By Horrific Accident. Is Narcolepsy To Blame?

  • Post author:Patient Worthy Contributor
  • Post published:September 7, 2015
  • Post category:Narcolepsy/Rare Disease

A 3-year-old boy is dead. His 5-year-old sister was seriously injured. His mother had minor injuries. On a actually pleasant Saturday morning in Buffalo, NY,the Buffalo News reports a horrific accident occurred at…

Continue Reading City Stunned By Horrific Accident. Is Narcolepsy To Blame?
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You Are Not Alone: Empowering the Advanced Kidney Cancer Community
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
Read Full Story Here
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