- This event has passed.
National Organization for Rare Disorders’ Living Rare, Living Stronger Patient and Family Forum
June 26 - June 28$39
The 2021 Living Rare, Living Stronger Patient and Family Interactive Virtual Forum
Featuring the Rare Impact Awards
June 26-28, 2021
This forum is specifically geared to be a patient-centric event. As always, this forum is meant to be a space for the rare disease community to converge for inspiration, education, networking, fun, and hope. The agenda includes sessions in which patients and their families can gain insight and practical tools for living their best lives with rare diseases, with workshops provided for newly-diagnosed patients, long-term patients, caregivers, siblings, physicians and medical students. The Forum will feature interactive Q&As, inspiring online panels presented by patients, caregivers and top rare disease medical experts—plus surprises!
The forum will take place on the 26th and 27th, while the Rare Impact Awards will be held on the 28th.
Interested in attending? Click here to register.