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Generalized arterial calcification of infancy-1 (GACI1)

Sir’Savion’s Story

Editor’s Note: Patient Worthy is honored to share this article from our friends at the Brighter Hope Foundation. To see the article in its original

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Primary Biliary Cholangitis

The PBCers Conference

This, year the PCBers will meet in Indianapolis, Indiana. They will be celebrating 30 years as a community, as well as celebrating a much brighter

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Appointments can feel overwhelming, but sometimes the smallest preparations can make the biggest difference. Writing down questions, tracking symptoms, bringing a support person, or simply giving yourself time to decompress afterward can help make each visit a little more manageable. Every appointment is a step toward understanding, advocating for, and caring for your health. And that matters!

What is one thing that helps make appointments easier for you?

#PatientAdvocacy #healthtips #PatientWorthy
... See MoreSee Less

Appointments can feel overwhelming, but sometimes the smallest preparations can make the biggest difference. Writing down questions, tracking symptoms, bringing a support person, or simply giving yourself time to decompress afterward can help make each visit a little more manageable. Every appointment is a step toward understanding, advocating for, and caring for your health. And that matters!

What is one thing that helps make appointments easier for you?

#PatientAdvocacy #HealthTips #PatientWorthy

Understanding COPD diagnosis and testing is essential for protecting your lung health. Tests like spirometry help measure how well your lungs are working and confirm a diagnosis, while additional tools such as imaging and oxygen checks provide a fuller picture of your condition.
Because COPD often develops slowly, many people don’t realize they have it until it’s more advanced. Early testing can help catch it sooner—allowing for better symptom management, slower progression, and improved quality of life. Knowing the signs and getting tested can make all the difference. 💙
If you'd like to share your story with COPD, click the link below! For more information visit our website at patientworthy.com
bit.ly/4dV7gru
#COPD #COPDAwareness #LungHealth #ShareYourStory #ChronicIllness #PatientWorthy
... See MoreSee Less

Understanding COPD diagnosis and testing is essential for protecting your lung health. Tests like spirometry help measure how well your lungs are working and confirm a diagnosis, while additional tools such as imaging and oxygen checks provide a fuller picture of your condition.
Because COPD often develops slowly, many people don’t realize they have it until it’s more advanced. Early testing can help catch it sooner—allowing for better symptom management, slower progression, and improved quality of life. Knowing the signs and getting tested can make all the difference. 💙
If youd like to share your story with COPD, click the link below! For more information visit our website at patientworthy.com
  https://bit.ly/4dV7gru
#COPD #COPDAwareness #LungHealth #ShareYourStory #ChronicIllness #PatientWorthyImage attachmentImage attachment+3Image attachment

Acute myeloid leukemia (AML) is a fast-growing blood cancer that can change life quickly and unexpectedly. Raising awareness can help bring attention to symptoms, diagnosis, treatment options, and the experiences of those impacted by AML. #acutemyeloidleukemia #amlawareness #rarediseaseoftheweek #raredisease #rarediseaseawareness #PatientWorthy ... See MoreSee Less

Acute myeloid leukemia (AML) is a fast-growing blood cancer that can change life quickly and unexpectedly. Raising awareness can help bring attention to symptoms, diagnosis, treatment options, and the experiences of those impacted by AML. #AcuteMyeloidLeukemia #AMLawareness #RareDiseaseOfTheWeek #RareDisease #RareDiseaseAwareness #PatientWorthy
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