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Addison’s disease

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This Woman Found Inspiration From an Olympian with Addison’s
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This Woman Found Inspiration From an Olympian with Addison’s

  • Post author:Al Pendleton
  • Post published:May 15, 2017
  • Post category:Addison's Disease/Rare Disease

Inspiration can be found in almost anything. Frequently, it’s a famous person from history who has overcome adversity to achieve some amazing feat. Sometimes it’s the busy person who finds…

Continue Reading This Woman Found Inspiration From an Olympian with Addison’s
Trigger Events for Addison’s Disease Lurk All Around
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Trigger Events for Addison’s Disease Lurk All Around

  • Post author:Al Pendleton
  • Post published:April 11, 2017
  • Post category:Addison's Disease/Rare Disease

For any number of reasons, we feel ill but decide that it's something innocuous. It might be that tickle in the back of your throat, causing those innocent little coughs…

Continue Reading Trigger Events for Addison’s Disease Lurk All Around
This April, You Can Learn the Latest in Endocrine Science!
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This April, You Can Learn the Latest in Endocrine Science!

  • Post author:Patient Worthy Contributor
  • Post published:February 24, 2017
  • Post category:Addison's Disease/Cushing Disease/Rare Disease

The Endocrine Society's Endo 2017 is the world's largest endocrine science presentation. Attendees will be able to network, learn about the newest product and technology updates, listen to thought-leaders, and…

Continue Reading This April, You Can Learn the Latest in Endocrine Science!
The Hidden Truth of JFK’s Addison’s Disease
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The Hidden Truth of JFK’s Addison’s Disease

  • Post author:Erica Zahn
  • Post published:January 10, 2017
  • Post category:Addison's Disease/Rare Disease

Anyone born before 1955 probably remembers exactly where they were when President John F. Kennedy (JFK) was shot. I've heard people reminisce about that moment right down to what they…

Continue Reading The Hidden Truth of JFK’s Addison’s Disease
What Google Can Teach You About Salt and Addison’s Disease
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What Google Can Teach You About Salt and Addison’s Disease

  • Post author:Sabina Kennedy
  • Post published:January 9, 2017
  • Post category:Addison's Disease/Rare Disease

I don’t know about you, but on very cold days, which seems to be the norm these days (even in the South), I crave hot foods like a hearty soup…

Continue Reading What Google Can Teach You About Salt and Addison’s Disease
A Voice for Chronic Illness: Top Things to Avoid and to Do
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A Voice for Chronic Illness: Top Things to Avoid and to Do

  • Post author:Sabina Kennedy
  • Post published:December 15, 2016
  • Post category:Addison's Disease/Rare Disease

I’ve been there. You’ve been there. We’ve all been there. And I’m thinking it’s a safe bet to say that we all hate it. We all know the feeling. When…

Continue Reading A Voice for Chronic Illness: Top Things to Avoid and to Do
What is it Like Living with Addison’s Disease?
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What is it Like Living with Addison’s Disease?

  • Post author:Jennifer Walker
  • Post published:December 14, 2016
  • Post category:Addison's Disease/Rare Disease

Living with Addison’s disease can be a challenge. Addison’s disease, also known as adrenal insufficiency or hypocortisolism, is a rare disorder of the endocrine system and affects approximately 1 out…

Continue Reading What is it Like Living with Addison’s Disease?
The Truth About Addison’s Disease and Useful Technology
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The Truth About Addison’s Disease and Useful Technology

  • Post author:Sabina Kennedy
  • Post published:December 12, 2016
  • Post category:Addison's Disease/Rare Disease

Are you looking for an Addison’s disease community so you can share similar experiences and learn more together? If so, Circle of Moms hosted by Popsugar may have the online…

Continue Reading The Truth About Addison’s Disease and Useful Technology
10 Shocking Symptoms of Addison’s Disease Will Save Your Life

10 Shocking Symptoms of Addison’s Disease Will Save Your Life

  • Post author:Alisha Stone
  • Post published:November 4, 2016
  • Post category:Addison's Disease/Rare Disease

I am completely BAFFLED About Addison’s disease! Are you?! You Should be! It’s Monday night, and I’m sitting—rather, lounging on the sofa, feeling baffled after reading a post from a…

Continue Reading 10 Shocking Symptoms of Addison’s Disease Will Save Your Life
How Much Do You Know About Addison’s?
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How Much Do You Know About Addison’s?

  • Post author:Erica Zahn
  • Post published:October 24, 2016
  • Post category:Addison's Disease/Rare Disease

Addison's disease is another name for adrenal insufficiency -- meaning the adrenal glands don't produce enough of the hormone cortisol and frequently create insufficient levels of aldosterone. Cortisol is the…

Continue Reading How Much Do You Know About Addison’s?
Editor’s Choice: The Quest for a Cure

Editor’s Choice: The Quest for a Cure

  • Post author:Patient Worthy Contributor
  • Post published:October 14, 2016
  • Post category:Acromegaly/Addison's Disease/Behçet's/Castleman Disease/Rare Disease

Welcome Back Patient Worthians! Acromegaly patients will be interested to see some new research happening in the name of rare disease. Speaking of research, there is a Castleman's event coming up…

Continue Reading Editor’s Choice: The Quest for a Cure
How Her Addison’s Diagnosis Saved Her Life

How Her Addison’s Diagnosis Saved Her Life

  • Post author:Patient Worthy Contributor
  • Post published:October 11, 2016
  • Post category:Addison's Disease/Rare Disease

I have been told that one of my first words spoken was "Why?" Ever inquisitive, I have always had a fascination with the how and why. As a child I…

Continue Reading How Her Addison’s Diagnosis Saved Her Life
Addison’s Disease: True Midnight in the Garden of Good and Evil?

Addison’s Disease: True Midnight in the Garden of Good and Evil?

  • Post author:Alisha Stone
  • Post published:October 10, 2016
  • Post category:Addison's Disease

Midnight in the Garden of Good and Evil with Addison’s disease Instills Compassion 12:00 a.m. I’m not kidding when I say it’s midnight, “in the garden of good and evil.”…

Continue Reading Addison’s Disease: True Midnight in the Garden of Good and Evil?
Addison’s Disease: What to Know and How to Fight

Addison’s Disease: What to Know and How to Fight

  • Post author:Erica Zahn
  • Post published:October 5, 2016
  • Post category:Addison's Disease/Rare Disease

What happens if your adrenal glands produce too little cortisol, and perhaps an insufficient level of aldosterone, as well? Addison's disease is the end result and it can be life-threatening.…

Continue Reading Addison’s Disease: What to Know and How to Fight
Why Was This Little Boy Wasting Away?

Why Was This Little Boy Wasting Away?

  • Post author:Winnie Nash
  • Post published:April 27, 2016
  • Post category:Addison's Disease/Rare Disease

For the Rust family, 2015 was challenging—challenging in ways they never thought imaginable. Why? Because this past year, their eight-year-old son Jourdin began displaying peculiar symptoms—extreme weight loss, in particular—which started…

Continue Reading Why Was This Little Boy Wasting Away?
So I Don’t Have To Pee in a Cup?!

So I Don’t Have To Pee in a Cup?!

  • Post author:Patient Worthy Contributor
  • Post published:April 4, 2016
  • Post category:Addison's Disease/Cushing Disease/Rare Disease

Measuring Late-night Salivary Cortisol (LNSC) is an alternative to blood and urine for both research and diagnostic use. No wonder patients are opting for salivary cortisol testing over blood and…

Continue Reading So I Don’t Have To Pee in a Cup?!
How To Survive A Diagnosis Of Addison’s Disease

How To Survive A Diagnosis Of Addison’s Disease

  • Post author:Farrah Fontaine
  • Post published:February 10, 2016
  • Post category:Addison's Disease

"Doctors didn't know what was wrong with me." "The frustration of not knowing what was wrong with me was overwhelming." "It made me wonder if I had gone crazy." Sound…

Continue Reading How To Survive A Diagnosis Of Addison’s Disease
The Outstanding Story of Dom “The Bomb” and His “Dirty” Feet!

The Outstanding Story of Dom “The Bomb” and His “Dirty” Feet!

  • Post author:EmpatheticBadass
  • Post published:December 4, 2015
  • Post category:Addison's Disease/Rare Disease

Dominick “Dom-the-Bomb” Lukowski has always loved baseball. But during his freshman year in high school, he was shocked to notice that he barely had the strength to throw a ball…

Continue Reading The Outstanding Story of Dom “The Bomb” and His “Dirty” Feet!
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