A new neuromuscular research center has opened at the Ottawa Hospital. The new center will allow patients living with neuromuscular conditions, such as muscular dystrophy and ALS, to be a…
According to a story from BioSpace, the biotechnology company BioElectron recently announced that the results from its Phase 2a clinical trial of its experimental product EPI-589 are looking positive. EPI-589…
According to a story from the Houston Chronicle, researchers are hoping that an immunotherapy treatment that was originally funded by an Ice Bucket Challenge grant could be a viable option…
According to a report by wearable-technologies.com, people living with ALS may soon enjoy a new method of communication. A new technology, known as EyeControl, plans to provide a way for…
According to Digital Health Age, a wearable eye technology may be revolutionary in the lives of those who have Locked-In Syndrome, which is often associated with ALS and other motor…
According to the Tampa Bay Times, Aaron McQ did not want to die. He knew, however, with his disease he would inevitably have to. The 50-year-old man from Seattle…
According to The Times of Israel, a group of researchers believe they have found the origin of what could lead to a treatment for amyotrophic lateral sclerosis. Given the debilitating effect…
According to a story by The Japan Times, Masatane Muto relies on a power wheelchair to move around. He is hardly in control of his own body and requires help…
According to ASHA.org, when Tiffany Turner graduated, she set out to expand opportunities for fellow speech language pathologists like herself. Turner saw a great need in her community for…
MedicNova Inc. has announced the results of subgroup analyses after a finished clinical trial. The trial was designed to evaluate MN-166 (ibudilast) as a possible treatment for amyotrophic lateral sclerosis…
According to a story from UK Healthcare, a team of researchers and scientists at UK Healthcare is preparing to start a clinical trial that will test a new therapy aimed…
According to a story from the Ottawa Sun, several hundred people participated in the annual ALS Walk on June 9th, in which people walk down the Sir John A. MacDonald…
The 2018 National ALS Advocacy Conference This event will be an opportunity for the ALS community to come together to learn more about the latest ALS research and treatments. In…
Researchers at Northwestern University (NU) have published research showing that changes in the brain causing spinocerebellar ataxia type 1 (SCA1) occur at a younger age than previously thought, reports NeuroscienceNews.…
A recently published study examines the response of motor nerve cells to motor neuron disease. Researchers hope that by more completely understanding this cellular response that they may be able…
According to a story from the National Institutes of Health, the innovative new CRISPR gene editing technology is being used in order to identify specific genes that could play a…
Thanks to a local physician’s group in Baton Rouge, patients with amyotrophic lateral sclerosis (ALS) no longer face lengthy drives to receive treatment. The clinic serving the Baton Rouge area…
Often children and other family members of patients with ALS end up being caregivers for their family, which can lead to isolation and a stressful life, reports WHYY. After Jodi…
Scientists in California at Salk Institute for Biological Studies are currently developing a drug that can mimic the effects in the body usually obtained from exercise, reports the National Post.…
The first new treatment approved for amyotrophic later sclerosis (ALS) has generated a lot of excitement and enthusiasm in the ALS community since its approval in May of 2017, but…
Originally reported by Columbia Daily Tribune, researchers from the University of Missouri have made huge strides towards treating, and maybe even curing, two fatal diseases: muscular dystrophy and Amyotrophic Lateral…
New evidence suggests that home care agencies are not giving Medicare assistance to chronically ill people that legally qualify for it, according to an article from wuwf.org. Take the case…
A new fundraising challenge is sweeping all social media platforms once again for amyotrophic lateral sclerosis (ALS), first reported Mom.me. Back in 2014, the ice bucket challenge was a wild success, being…
Nanette Whitfield, stood beside her best friend and husband as amyotrophic lateral sclerosis (ALS) painfully took his life, reported The Record Courier. Watching someone you love slowly lose everything has…
Everyone with Facebook surely remembers when people were posting videos of themselves having ice cold water dumped on their heads. But, does everyone remember what it was for? The Ice…
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