In honor of World Duchenne Awareness Day on September 7th, Mal Duffin has invited us to share this app designed for parents whose children are living with Duchenne Muscular Dystrophy. Mal's…
A new study published at ScienceDirect.com sheds light on the profound social challenges faced by individuals and families living with rare diseases. The article examines how rare diseases, while medically…
Talking to the parents or family of a child with a serious illness can be nerve-racking and uncomfortable. Sometimes avoiding the family can seem easier than facing a difficult situation.…
Happy Tuesday, Caregivers! I say this in all sincerity because as caregivers—it’s easy to find yourself actually dreading the weekends, right? You know what I’m talking about. You know that…
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