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One Woman’s Journey to Raise Cushing Disease Awareness
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One Woman’s Journey to Raise Cushing Disease Awareness

  • Post author:Jessica Lynn
  • Post published:May 29, 2024
  • Post category:Cushing Disease

In 2006, shortly after giving birth to her second child, Kelly Knight’s life drastically changed. Debilitating headaches and rapid weight gain, especially around her neck and shoulders, left her feeling…

Continue Reading One Woman’s Journey to Raise Cushing Disease Awareness
Strange Symptoms Lead to Diagnosis of Cushing’s Disease

Strange Symptoms Lead to Diagnosis of Cushing’s Disease

  • Post author:Rose Duesterwald
  • Post published:October 2, 2023
  • Post category:Cushing Disease

Editor's Note: We believe that patients are a key part of developing and leading the conversation in disease communities. Patient Worthy sometimes partners with reputable agencies that wish to speak…

Continue Reading Strange Symptoms Lead to Diagnosis of Cushing’s Disease
Extension Study Findings Show Isturisa Benefits for Cushing’s Disease
source: shutterstock.com

Extension Study Findings Show Isturisa Benefits for Cushing’s Disease

  • Post author:Jessica Lynn
  • Post published:December 8, 2022
  • Post category:Cushing Disease

  Cushing’s disease (or Cushing disease) occurs when a benign pituitary growth or tumor leads to the overproduction of adrenocorticotropic hormone (ACTH). As ACTH is overproduced, the body also begins…

Continue Reading Extension Study Findings Show Isturisa Benefits for Cushing’s Disease
Isturisa for Cushing’s Disease Raises Adrenal Insufficiency Risk
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Isturisa for Cushing’s Disease Raises Adrenal Insufficiency Risk

  • Post author:Jessica Lynn
  • Post published:July 20, 2021
  • Post category:Addison's Disease/Addison’s Disease/Cushing Disease

Even though some treatments are beneficial for patients, these same treatments can also cause adverse reactions. This seems to be the case for Isturisa (osilodrostat), according to Cushing's Disease News.…

Continue Reading Isturisa for Cushing’s Disease Raises Adrenal Insufficiency Risk
Risk of Blood Clots Highest Within 6 Months of Cushing Syndrome Surgery
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Risk of Blood Clots Highest Within 6 Months of Cushing Syndrome Surgery

  • Post author:Jessica Lynn
  • Post published:July 19, 2021
  • Post category:Cushing Syndrome

For patients with Cushing syndrome, transsphenoidal surgery can be a beneficial option for addressing pituitary growths or tumors. But according to Cushing's Disease News, this same surgery also increases the…

Continue Reading Risk of Blood Clots Highest Within 6 Months of Cushing Syndrome Surgery
UK MHRA Approves Efmody for CAH
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UK MHRA Approves Efmody for CAH

  • Post author:Jessica Lynn
  • Post published:July 19, 2021
  • Post category:Congenital Adrenal Hyperplasia

In the United Kingdom, the Medicines and Healthcare products Regulatory Agency (MHRA) regulates medication, transfusion components, and medical devices, making sure they meet safety and efficacy standards. According to Pharma…

Continue Reading UK MHRA Approves Efmody for CAH
NDA Submitted: RECORLEV for Cushing Syndrome
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NDA Submitted: RECORLEV for Cushing Syndrome

  • Post author:Jessica Lynn
  • Post published:March 5, 2021
  • Post category:Cushing Syndrome

Recently, biopharmaceutical company Strongbridge Biopharma plc ("Strongbridge") shared that the company submitted a New Drug Application (NDA) to the FDA. The NDA is centered around RECORLEV (levoketoconazole), a treatment option…

Continue Reading NDA Submitted: RECORLEV for Cushing Syndrome
Exposure to Stress Leaves an Imprint on the Brain Leading to Stress-Related Insomnia

Exposure to Stress Leaves an Imprint on the Brain Leading to Stress-Related Insomnia

  • Post author:Rose Duesterwald
  • Post published:January 8, 2021
  • Post category:Rare Disease

Most people are aware of various symptoms caused by the stress that we experience on a day-to-day basis. However, there are a variety of physiological reactions that affect our peripheral…

Continue Reading Exposure to Stress Leaves an Imprint on the Brain Leading to Stress-Related Insomnia
Using Hair Cortisol Analysis to Diagnose Cushing’s Disease

Using Hair Cortisol Analysis to Diagnose Cushing’s Disease

  • Post author:Sunniva Bean
  • Post published:November 2, 2020
  • Post category:Cushing Disease

As reported in Cushing's Disease News; a woman diagnosed with Cushing's Disease via hair cortisol analysis is being used as a case study for why hair is a good tool…

Continue Reading Using Hair Cortisol Analysis to Diagnose Cushing’s Disease
UK Patients with Addison’s Disease Will be Given Steroid Emergency Card
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UK Patients with Addison’s Disease Will be Given Steroid Emergency Card

  • Post author:Jessica Lynn
  • Post published:August 25, 2020
  • Post category:Addison’s Disease

Over the last 2 years, the UK has seen 4 deaths and 320 safety incidents related to missing steroid usage, a story from The Independent explains. For patients with Addison's disease,…

Continue Reading UK Patients with Addison’s Disease Will be Given Steroid Emergency Card
You Can Get All Up in My Nose For Cushing’s!
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You Can Get All Up in My Nose For Cushing’s!

  • Post author:Erica Zahn
  • Post published:November 2, 2016
  • Post category:Cushing Disease/Rare Disease

Cushing's disease is caused by the pituitary gland creating too much andrenocorticotropic hormone, or ACTH. In 80% of diagnosed cases, Cushing's disease is the result of a benign tumor on the…

Continue Reading You Can Get All Up in My Nose For Cushing’s!
How Much Do You Know About Addison’s?
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How Much Do You Know About Addison’s?

  • Post author:Erica Zahn
  • Post published:October 24, 2016
  • Post category:Addison's Disease/Rare Disease

Addison's disease is another name for adrenal insufficiency -- meaning the adrenal glands don't produce enough of the hormone cortisol and frequently create insufficient levels of aldosterone. Cortisol is the…

Continue Reading How Much Do You Know About Addison’s?

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