• About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
Menu
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
  • Join PW
Click Here To Share Your Story with Narcolepsy
Click Here to Read Real Stories From Patients And Caregivers
Click Here To Share Your Story With MASH

Cystic Fibrosis Diagnosis

  1. Home>
  2. Cystic Fibrosis Diagnosis
Genetic Testing: The Future of Preventing Cystic Fibrosis?
Free-Photos / Pixabay

Genetic Testing: The Future of Preventing Cystic Fibrosis?

  • Post author:Octavia Walker
  • Post published:July 10, 2017
  • Post category:Cystic Fibrosis/Rare Disease

So much of it “comes down to morals.” A couple struggling with cystic fibrosis may have up to a 50% chance of passing the gene on to their child if…

Continue Reading Genetic Testing: The Future of Preventing Cystic Fibrosis?
The Cystic Fibrosis Taboo You Should Break
Source: pixabay.com

The Cystic Fibrosis Taboo You Should Break

  • Post author:Sabina Kennedy
  • Post published:December 7, 2016
  • Post category:Cystic Fibrosis/Rare Disease

When faced with the unexpected, we often are overwhelmed with fear about of what lies ahead. If you or a loved one have dealt with a devastating medical diagnosis, many…

Continue Reading The Cystic Fibrosis Taboo You Should Break
Inhale, Exhale: Breathe Easy! New CF Tools Are On The Way
Source: https://pixabay.com/en/sky-clouds-rays-sun-hope-sunbeam-1107952/

Inhale, Exhale: Breathe Easy! New CF Tools Are On The Way

  • Post author:Ronald Ledsen
  • Post published:April 29, 2016
  • Post category:Cystic Fibrosis/Rare Disease

When most of us think of breathalyzer tests, we picture flashing lights, police officers, and stern discussions of how fast we were driving (…or is that just me?). But of…

Continue Reading Inhale, Exhale: Breathe Easy! New CF Tools Are On The Way
PH Sensor Could Help Confront Cystic Fibrosis
Science!

PH Sensor Could Help Confront Cystic Fibrosis

  • Post author:Patient Worthy Contributor
  • Post published:December 18, 2015
  • Post category:Cystic Fibrosis/Rare Disease

If you have cystic fibrosis, you might know that it is linked to low PH levels. The current PH sensors aren't sensitive enough to capture molecules at different stages called…

Continue Reading PH Sensor Could Help Confront Cystic Fibrosis
Finding Strength Together: Scott and Katie’s Journey with Advanced Kidney
You Are Not Alone: Empowering the Advanced Kidney Cancer Community
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
Read Full Story Here
We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.
Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

Let’s Work Together!

Partner With Us
Submit a Story

Keep Up to Date

Subscribe to Our Newsletter
Check Out Rare Events
Get Inspired By Our Memes

Learn More

About Us
Rare Diseases and Conditions
Terms of Use
Privacy Notice
Privacy Policy for CA Residents
EU/UK Privacy Notice
Data Privacy Framework: Consumer Privacy Policy
Consumer Health Data Privacy Policy
Cookie Notice

Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope

© Copyright 2024 Patient Worthy

Sign Up With a Patient Worthy Account and Share Your Rare Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info

We're Happy You're Here!

What best describes you when it comes to rare disease? (check all that apply)

What rare disease(s)/conditions are most important to you?

Visit Home Page or

Thank you for signing up for a Patient Worthy Account!

Have a rare disease story to share? Let us know

Share Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info