Speakers: Laura Rohe, RN Elizabeth Thirtyacre To register for this live event, click here. Important Safety Information: WARNING: Thrombosis (blood clots) can occur with immune globulin products, including Hizentra. Please see…
Speakers: Laura Rohe, RN Dani Ball To register for this live event, click here. Important Safety Information: WARNING: Thrombosis (blood clots) can occur with immune globulin products, including Hizentra. Please see…
The 2019 Colorado Springs One-Day Regional Conference Are you a GBS or CIDP patient? Then don’t miss this one day patient conference. At this event, GBS and CIDP patients and…
The 2019 Annual Clinical Genetic Meeting "Shaping The Future of Genetics and Genomics" This meeting is an opportunity for the medical genetics community to learn about the latest research, clinical…
The 2019 NMO Patient Day This event is an opportunity for neuromyelitis optica (NMO) to converge and build community with each other. Don't miss this chance to learn more about…
The 2019 MGFA National Conference The National Conference is the largest gathering of myasthenia gravis patients in the US. This event is a great opportunity for myasthenia gravis patients to…
The MDS Patient & Family/Caregiver Forum at Jacksonville, Florida Have you been affected by myelodysplastic syndromes (MDS)? Perhaps you have just been diagnosed or have been facing your disease for…
The 2019 Living With Aplastic Anemia, MDS, PNH Patient and Family Conference This unique conference, which will be held in Albuquerque, New Mexico is an exceptional opportunity for patients with aplastic…
The 62nd NAF Annual Ataxia Conference "Ataxia: A Treatable Disease" Are you affected by ataxia? Then don't miss out on the largest ataxia themed event in the world where patients…
The 2019 Cystinosis Research Foundation Day of Hope Family Conference This conference for cystinosis patients and their families is a unique opportunity for attendees to learn the latest in cystinosis…
Speakers: Carla Duff ARNP, CPNP-PC, MSN Appolos Laurore To register for this live event, click here. Important Safety Information: WARNING: Thrombosis (blood clots) can occur with immune globulin products, including…
The 16th International Pituitary Congress and The 2019 National Acromegaly Conference This year, the Pituitary Society and the Acromegaly Community have, on the basis of shared interest and common goals,…
The 2019 National Acromegaly Conference This acromegaly event is the ideal opportunity for patients, physicians, caregivers, and families to come together to learn more about acromegaly and the latest research…
Pediatric Aplastic Anemia and PNH This webinar will feature Dr. Kasiani Myers from The Cancer and Blood Diseases Institute discussing the causes, treatment, and diagnosis of PNH and aplastic anemia…
The 2019 Annual Symposium The Coalition for Hemophilia B's annual symposium is the largest annual gathering specifically for hemophilia B patients and their families. Learn the latest in research and…
The 2019 American Glaucoma Society's Annual Meeting This year's event will feature poster and roundtable discussions, symposia from disease experts, and interactive debates on the most important subjects related to…
The 2019 Princeton One-Day Regional Conference Don't miss this one day conference for GBS and CIDP patients. Attendees will learn the latest about disease treatment and research as well as…
The MDS Patient & Family/Caregiver Forum at Phoenix, Arizona Have you been affected by myelodysplastic syndromes (MDS)? Perhaps you have just been diagnosed or have been facing your disease for…
The MS Awareness Month Kickoff This kickoff event for Multiple Sclerosis Awareness Month is intended to foster education and community for MS patients, their families, and caregivers. Hear powerful testimony…
What's New in Aplastic Anemia and PNH? Important Findings from ASH 2018 This online webinar with Dr. Bhumika Patel will discuss the latest aplastic anemia and PNH research presented at…
The Durham Patient Education Conference 2019 This conference will be an opportunity for sarcoidosis patients and their families to learn the latest about sarcoidosis clinical care, treatment approaches, and the…
Patient Worthy has the distinct pleasure of attending the Sixth Annual Rare Disease Genomics Symposium at the University of Alabama at Birmingham (UAB) this weekend. Today, we heard from lead…
The 13th Annual Conference for Adults with Endocrine Disorders The comprehensive educational program will be an opportunity for patients, their families, and caregivers to learn the latest information about a…
Speakers: Stephanie Stencil Laura Rohe RN, BSN, AE-C To register for this webinar, click here. To read more about Webinar Wednesdays, click here. Important Safety Information: WARNING: Thrombosis (blood clots) can occur with…
Rare Disease Legislative Advocates' Legislative Conference Part of Rare Disease Week on Capitol Hill 2019 All of the events for Rare Disease Week are free to patients, advocates, and caregivers.…
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