Cocktail Reception and Rare Disease Documentary Part of Rare Disease Week on Capitol Hill 2019 All of the events for Rare Disease Week are free to patients, advocates, and caregivers.…
Speakers: Elizabeth Thirtyacre Carla Duff ARNP, CPNP-PC, MSN To register for this webinar, click here. To read more about Webinar Wednesdays, click here. Important Safety Information: WARNING: Thrombosis (blood clots) can occur with…
NCSG Annual Conference 2019 The NCSG's annual conference is an opportunity for gastrointestinal medical professionals who study diseases affecting the digestive tract, such as achalasia, gastroesophageal reflux, irritable bowel disease,…
NCSG, North Carolina Society of Gastroenterology, hots their annual conference on February 16-17th, 2019 in Pinehurst, North Carolina. For more information, please email [email protected].
Speakers: Estelle Helms Carla Duff ARNP, CPNP-PC, MSN To register for this webinar, click here. To read more about Webinar Wednesdays, click here. Important Safety Information: WARNING: Thrombosis (blood clots) can occur with…
The final film screening of "Take A Look At This Heart" This unique film looks at the rarely addressed subject of the intimate and romantic lives of people with disabilities.…
Speakers: Stephanie Stencil Carla Duff ARNP, CPNP-PC, MSN To register for this webinar, click here. To read more about Webinar Wednesdays, click here. Important Safety Information: WARNING: Thrombosis (blood clots) can occur with…
Speakers: Laura Rohe RN, BSN, AE-C Elizabeth Thirtyacre To register for this live event, click here. Important Safety Information: WARNING: Thrombosis (blood clots) can occur with immune globulin products, including Hizentra.…
Speakers: Elizabeth Thirtyacre Carla Duff ARNP, CPNP-PC, MSN To register for this live event, click here. Important Safety Information: WARNING: Thrombosis (blood clots) can occur with immune globulin products, including Hizentra.…
Speakers: Carla Duff ARNP, CPNP-PC, MSN Appolos Laurore To register for this live event, click here. Important Safety Information: WARNING: Thrombosis (blood clots) can occur with immune globulin products, including Hizentra.…
Speakers: Stephanie Stencil Laura Rohe RN, BSN, AE-C To register for this webinar, click here. To read more about Webinar Wednesdays, click here. Important Safety Information: WARNING: Thrombosis (blood clots) can occur with…
A rarely addressed subject that comes up in discussions about people with disabilities is the subject of romantic relationships, intimacy, and parenting. More than likely, a lot of day to…
The Birmingham Patient Education Conference This conference will be a valuable opportunity for sarcoidosis patients and their families to learn the latest in sarcoidosis clinical care and treatment options, as…
Speakers: Estelle Helms Carla Duff ARNP, CPNP-PC, MSN To register for this webinar, click here. To read more about Webinar Wednesdays, click here. Important Safety Information: WARNING: Thrombosis (blood clots) can occur with…
Speakers: Laura Rohe RN, BSN, AE-C Elizabeth Thirtyacre To register for this live event, click here. Important Safety Information: WARNING: Thrombosis (blood clots) can occur with immune globulin products, including Hizentra.…
A free MDS Patient & Family/Caregiver Forum, sponsored by The MDS Foundation Inc., will be held in Beverly Hills, California on February 2nd. When: Saturday, February 2nd, 2019 Where: Beverly…
The Annual MS Holiday Gala The Roanoke Valley MS Support Group invites anyone whose life has been affected by multiple sclerosis, including caregivers, family and dear friends to join us…
Newborn Screening Webinar/Conference Call Are you interested in learning more about newborn screenings for rare diseases? Then don't miss this educational webinar, which will focus on the importance of newborn…
Learning Conference Australia This conference will combine educational sessions geared both towards health professional and Ehlers-Danlos syndrome patients. The event will also be an opportunity for the patient community to…
This weekend Patient Worthy attended RAREfest, an event being held in the UK by the Cambridge Rare Disease Network to raise awareness and promote discussion around rare disease issues. The…
Learning Conference Australia This conference will combine educational sessions geared both towards health professional and Ehlers-Danlos syndrome patients. The event will also be an opportunity for the patient community to…
The Newborn Screening Saves Lives Act was originally introduced to facilitate the spreading of awareness and education related to newborn disease screenings. The screening of newborns has had a major…
The 23rd Annual Meeting and Education Day This event will feature scientific presentations pertaining to the study and treatment of brain tumors such as glioblastoma. This year will focus on…
The annual Global Genes Rare Patient Advocacy Summit is wonderful place for families affected by rare disease to come together and interact face to face with advocacy leaders in addition…
The 6th Annual International ECD Medical Symposium and Family Gathering This event will feature a scientific research symposium on 11/14 and 11/15, as well as a Erdheim-Chester disease family convergence…
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