Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope Share
CLICK HERE TO SHARE YOUR STORY!
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
Menu
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
  • Join PW

eye disease

  1. Home>
  2. eye disease
Interim Results Available on LL-BMT1 for Glaucoma
source: pixabay.com

Interim Results Available on LL-BMT1 for Glaucoma

  • Post author:Jessica Lynn
  • Post published:June 13, 2023
  • Post category:Glaucoma

About 150,000 people with glaucoma across the United States wear contact lenses—and they may soon have access to an even more effective wearable treatment option.  According to Medical Device Network,…

Continue Reading Interim Results Available on LL-BMT1 for Glaucoma
New Partnership Aims to Tackle Bietti’s Crystalline Dystrophy
source: pixabay.com

New Partnership Aims to Tackle Bietti’s Crystalline Dystrophy

  • Post author:James Moore
  • Post published:March 11, 2021
  • Post category:Bietti's crystalline dystrophy

According to a story from Valdosta Daily Times, a collaboration between the biotechnology company ReflectionBio® and the nonprofit organization Invincible Vision is taking aim at the rare disease Bietti's crystalline…

Continue Reading New Partnership Aims to Tackle Bietti’s Crystalline Dystrophy
Wet Macular Degeneration: X-82 Clinical Trial Stopped Over Toxicity Issues
Source: Pixabay.com

Wet Macular Degeneration: X-82 Clinical Trial Stopped Over Toxicity Issues

  • Post author:Jessica Lynn
  • Post published:July 30, 2020
  • Post category:Wet macular degeneration

  Over the last few days, the American Society of Retina Specialists (ASRS) held their Annual Virtual Meeting; coined "2020 Virtual Sessions," professionals converged online to share insights into ophthalmological…

Continue Reading Wet Macular Degeneration: X-82 Clinical Trial Stopped Over Toxicity Issues
Orphan Eye Disease Drug News: When Your Eyes are Affected

Orphan Eye Disease Drug News: When Your Eyes are Affected

  • Post author:Patient Worthy Contributor
  • Post published:March 31, 2016
  • Post category:Behçet's/Intracranial Hypertension/Rare Disease/Stargardt Disease

Discovery Phase Drugs for Orphan Eye Diseases IVMED-100- 80- 90 are currently without generic drug names. They are under development for the treatment of orphan eye diseases by iVeena, LLC who has 6…

Continue Reading Orphan Eye Disease Drug News: When Your Eyes are Affected
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
CLICK HERE TO SHARE YOUR STORY!
We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.
Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

Let’s Work Together!

Partner With Us
Submit a Story

Keep Up to Date

Subscribe to Our Newsletter
Check Out Rare Events
Get Inspired By Our Memes

Learn More

About Us
Rare Diseases and Conditions
Terms of Use
Privacy Notice
Privacy Policy for CA Residents
EU/UK Privacy Notice
Data Privacy Framework: Consumer Privacy Policy
Consumer Health Data Privacy Policy
Cookie Notice

Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope

© Copyright 2024 Patient Worthy

Sign Up With a Patient Worthy Account and Share Your Rare Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info

We're Happy You're Here!

What best describes you when it comes to rare disease? (check all that apply)

What rare disease(s)/conditions are most important to you?

Visit Home Page or

Thank you for signing up for a Patient Worthy Account!

Have a rare disease story to share? Let us know

Share Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info