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fitness

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12 Weeks of Exercise Increased Fitness in Myotonic Dystrophy Patients
source: pixabay.com

12 Weeks of Exercise Increased Fitness in Myotonic Dystrophy Patients

  • Post author:Rose Duesterwald
  • Post published:June 23, 2022
  • Post category:Myotonic Dystrophy

According to a recent article in The British publication The Economic Times, a group of researchers at McMaster University have a win-win proposal for myotonic dystrophy (MD) patients. Eleven people were…

Continue Reading 12 Weeks of Exercise Increased Fitness in Myotonic Dystrophy Patients
#MoveInMay – Check Out Rare Disease Work Out Tips on National Physical Education and Sport Week
Source: Pixabay

#MoveInMay – Check Out Rare Disease Work Out Tips on National Physical Education and Sport Week

  • Post author:Jean Martell
  • Post published:May 1, 2018
  • Post category:Rare Disease/Timely

Let's get moving in May! First off, for all you pop culture/Internet meme lovers, it's that time of year... May means we're on the eve of summertime, knee-deep in springtime,…

Continue Reading #MoveInMay – Check Out Rare Disease Work Out Tips on National Physical Education and Sport Week
25 Years of Breathing Through a Straw
 my sister's wedding day about 1 month post double lung transplant

25 Years of Breathing Through a Straw

  • Post author:Patient Worthy Contributor
  • Post published:October 20, 2016
  • Post category:Cystic Fibrosis/Rare Disease

I have been living with Cystic Fibrosis (CF) since birth. I was lucky that I was diagnosed early and started on medicine straight away. One in every 25 people carry the…

Continue Reading 25 Years of Breathing Through a Straw
Dancing With Huntington’s is the New Craze You Need to Know

Dancing With Huntington’s is the New Craze You Need to Know

  • Post author:PW Blogger
  • Post published:July 11, 2016
  • Post category:Huntington's disease/Rare Disease

Dancing is all the rage these days, with shows like Dancing With the Stars bringing in top ratings. People are enrolling more in dance classes, and going to the ballrooms in…

Continue Reading Dancing With Huntington’s is the New Craze You Need to Know
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
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