Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope Share
CLICK HERE TO SHARE YOUR STORY!
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
Menu
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
  • Join PW

HAE Day

  1. Home>
  2. HAE Day
Get Active to Celebrate HAE Day on May 16!

Get Active to Celebrate HAE Day on May 16!

  • Post author:Kendall Mason
  • Post published:May 10, 2022
  • Post category:Hereditary Angiodema/Hereditary angioedema

Raising awareness is extremely important when it comes to rare diseases. After all, rarity typically results in minimal public and medical awareness. That's why patient communities and other dedicated individuals…

Continue Reading Get Active to Celebrate HAE Day on May 16!
Everything You Need to Know About HAE
Source: pixabay.com

Everything You Need to Know About HAE

  • Post author:Al Pendleton
  • Post published:February 13, 2017
  • Post category:HAE/Rare Disease

Close your eyes. Now imagine what it would be like to have a hand swell to two, three, or four times as large as it normally is. It could happen…

Continue Reading Everything You Need to Know About HAE
Is This Innovative HAE Drug Exploiting Patients?
Source: pixabay.com

Is This Innovative HAE Drug Exploiting Patients?

  • Post author:Kathy Devanny
  • Post published:May 20, 2016
  • Post category:HAE/Rare Disease

The HAE community cheered in July of 2015 when another new therapy was approved by the FDA to treat acute HAE attacks. Now, the pharma company has another reason to cheer. The…

Continue Reading Is This Innovative HAE Drug Exploiting Patients?
There Is Hope For Those With HAE.

There Is Hope For Those With HAE.

  • Post author:Kristen Lord
  • Post published:May 17, 2016
  • Post category:HAE/Rare Disease

There Is Hope For Those With HAE. The more you know, the more normal of a life you or your loved one can lead. Check out haea.org and don't let HAE…

Continue Reading There Is Hope For Those With HAE.
May 16th Is HAE Day – Participate!

May 16th Is HAE Day – Participate!

  • Post author:Kristen Lord
  • Post published:May 16, 2016
  • Post category:HAE/Rare Disease

May 16th is HAE Day. Participate in raising awareness by joining the campaign to cover the world with smiles.

Continue Reading May 16th Is HAE Day – Participate!
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
CLICK HERE TO SHARE YOUR STORY!
We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.
Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

Let’s Work Together!

Partner With Us
Submit a Story

Keep Up to Date

Subscribe to Our Newsletter
Check Out Rare Events
Get Inspired By Our Memes

Learn More

About Us
Rare Diseases and Conditions
Terms of Use
Privacy Notice
Privacy Policy for CA Residents
EU/UK Privacy Notice
Data Privacy Framework: Consumer Privacy Policy
Consumer Health Data Privacy Policy
Cookie Notice

Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope

© Copyright 2024 Patient Worthy

Sign Up With a Patient Worthy Account and Share Your Rare Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info

We're Happy You're Here!

What best describes you when it comes to rare disease? (check all that apply)

What rare disease(s)/conditions are most important to you?

Visit Home Page or

Thank you for signing up for a Patient Worthy Account!

Have a rare disease story to share? Let us know

Share Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info