National Organization of Rare Diseases

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Handling Rare Diseases and COVID-19: National Organization for Rare Disorders Reminds You to Stay Strong

Post author:Jessica Lynn
Post published:April 14, 2020
Post category:Cystic Fibrosis Rare Disease Spinal Muscular Atrophy

If you're worried or anxious because of COVID-19, you're not alone. If wondering about the intersection of rare diseases and COVID-19 only increases that anxiety, well, we're with you…

We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.

Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

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