Women's Wellness Tea May 11, 2024 Golden Valley Country Club The Women’s Wellness Tea is an educational, social (and very fun!) event that celebrates women while exploring habits that lead…
Brewery Night Hosted by the Young Leaders Board April 15, 2024 Bricksworth Beer Co, Minneapolis, MN Learn more about lung cancer by visiting A Breath of Hope’s Young Leaders Board…
Rare Community Profiles Rare Community Profiles is a new Patient Worthy article series of long-form interviews featuring various stakeholders in the rare disease community, such as patients, their…
The 2019 NMO Patient Day This event is an opportunity for neuromyelitis optica (NMO) to converge and build community with each other. Don't miss this chance to learn more about…
Neuromyelitis optica (NMO), or Devic's disease is a rare autoimmune condition which causes inflammation in the optic nerve and/or spinal cord. The condition affects 5 in every 1,000,000 people and…
This event will be an opportunity for researchers, industry leaders, nonprofit organizations, and more to converge and learn about the latest research and solutions related to neuromyelitis optica.
Well, for anyone who's looking for information about neuromyelitis optica (NMO) or what’s also known as Devic’s disease or Devic’s syndrome—AND who happens to have a spare 45 minutes on…
In the midst of an ugly American presidential post-election, I am actively looking for inspiration to distract me from this mess. And man, was I lucky! There’s a gal who’s living…
I just watched a YouTube video, posted by a sweet red-headed, freckly-faced teenager, who is living with neuromyelitis optica (NMO). NMO is a rare autoimmune, demyelinating disease that attacks people…
In today’s research world, the practice of teamwork has gained in popularity. This is especially true for researchers who work to better understand Neuromyelitis optica (NMO). NMO is an uncommon…
OMG. It’s a Friday afternoon and as I’m sitting here, my heart is breaking for people with neuromyelitis optica, a very rare disease that use to be considered a rare…
If you’re a fan of the TV show MasterChef USA, you may remember Christina Ha, the contestant that cooked her way into our hearts—and into the winner’s circle!—despite the fact…
In an effort to learn more about neuromyelitis optica (NMO)—a chronic illness also known as Devic’s syndrome or Devic’s disease—I tuned into another YouTube video of a PhD. He'd been…
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