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According to a recent article published by the University of California San Francisco, Pelizaeus-Merzbacher disease (PMD) is a rare neurological disease affecting young boys. PMD fatalities may occur before the child…
The 30th Annual PMD Family Support Conference 2019 Indianapolis, Indiana This event is a valuable opportunity for Pelizaeus-Merzbacher disease patients and their families to come together for a valuable time…
The 2018 Annual Conference This conference will feature a program that focuses on the latest research and information for Pelizaeus-Merzbacher disease. Discounted $119/night rate for participants.
Doctors told Shawn Rogers, who they had diagnosed with Pelizaeus-Merzbacher disease, that he might only have days to live. However, today he is swimming with dolphins, a dream that he…
Two-year-old Clark Cutler's parents felt alone when dealing with his rare disease, until they stumbled upon the United Leukodystrophy Foundation. Clark was diagnosed with Pelizaeus-Merzbacher disease when he was just…
When three-year-old Jake Burgman was born, something was wrong. Three months into his life, the Burgman's noticed that Jake was unable to lift his own head, among other developmental delays.…
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