Urban’s Life with SATB2-Associated Syndrome
Acknowledgement: Patient Worthy is honored to share this story by Erika Stariha, Co-Founder and President of SATB2 Europe. This is Urban, my teenage firstborn. He is joyful. Curious. Full of…
Acknowledgement: Patient Worthy is honored to share this story by Erika Stariha, Co-Founder and President of SATB2 Europe. This is Urban, my teenage firstborn. He is joyful. Curious. Full of…
ACKNOWLEDGMENT Patient Worthy is grateful to our partner Elephants & Tea for providing the following article by Gina Jackson. Elephants & Tea‘s mission is to help adolescent and young adult…
I live with a rare, genetic disease called familial chylomicronemia syndrome, or FCS, which prevents my body from breaking down fats and removing triglycerides from my bloodstream. FCS is inherited…
"Fate whispers to the warrior, 'You cannot withstand the storm.' The warrior whispers back, ‘I am the storm.” -Jake Remington This is Jaime Gibbons' favorite quote. While going through her…