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Urban’s Life with SATB2-Associated Syndrome

Urban’s Life with SATB2-Associated Syndrome

  • Post author:Kathy Devanny
  • Post published:August 28, 2025
  • Post category:SATB2-associated Syndrome

Acknowledgement: Patient Worthy is honored to share this story by Erika Stariha, Co-Founder and President of SATB2 Europe. This is Urban, my teenage firstborn. He is joyful. Curious. Full of…

Continue Reading Urban’s Life with SATB2-Associated Syndrome
Finding Light in the After

Finding Light in the After

  • Post author:PW Collaborator
  • Post published:August 27, 2025
  • Post category:Breast Cancer

ACKNOWLEDGMENT Patient Worthy is grateful to our partner Elephants & Tea for providing the following article by Gina Jackson. Elephants & Tea‘s mission is to help adolescent and young adult…

Continue Reading Finding Light in the After
Living with Familial Chylomicronemia Syndrome

Living with Familial Chylomicronemia Syndrome

  • Post author:Patient Worthy Contributor
  • Post published:July 25, 2025
  • Post category:Familial Chylomicronemia Syndrome

I live with a rare, genetic disease called familial chylomicronemia syndrome, or FCS, which prevents my body from breaking down fats and removing triglycerides from my bloodstream. FCS is inherited…

Continue Reading Living with Familial Chylomicronemia Syndrome
Jaime’s Story: Invasive Lobular Carcinoma

Jaime’s Story: Invasive Lobular Carcinoma

  • Post author:Jena Collins
  • Post published:October 31, 2024
  • Post category:Breast Cancer

"Fate whispers to the warrior, 'You cannot withstand the storm.' The warrior whispers back, ‘I am the storm.” -Jake Remington This is Jaime Gibbons' favorite quote. While going through her…

Continue Reading Jaime’s Story: Invasive Lobular Carcinoma
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
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