Researchers from the Max Planck Institute for Evolutionary Anthropology (MPI-EVA) have been collecting and analyzing data on ancient DNA for years. This DNA has given the researchers a stronger…
Rare Community Profiles Rare Community Profiles is a new Patient Worthy article series of long-form interviews featuring various stakeholders in the rare disease community, such as patients, their…
Welcome to the Rare Classroom, a new series from Patient Worthy. Rare Classroom is designed for the curious reader who wants to get informed on some of the rarest, most…
Rachel Harrison remembers what the doctors told her when her daughter Hope was born – that she wasn’t going to make it. You see, Hope was born with a rare…
According to a publication from the Basingstoke Gazette, a Basingstoke family is raising money for the children's hospice center that supported them through the loss of a child. Jessica and…
With the advent of a majority conservative Supreme Court with the appointment of Brett Kavanaugh last year, several US states have recently passed laws that effectively ban abortions. Many of…
The 32nd Annual Medical & Family Conference This conference will be a chance for the trisomy 18 patient community to come together, to share stories, spread support, and build community.…
According to a story from the Daily Post, Katie Roy and Tjay Narciso were horrified when doctors told them that their new born daughter Kaila will only survive for a…
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