Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope Share
CLICK HERE TO SHARE YOUR STORY!
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
Menu
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
  • Join PW

Ultomiris

  1. Home>
  2. Ultomiris
Ultomiris Fails in Phase 3 Trial for ALS

Ultomiris Fails in Phase 3 Trial for ALS

  • Post author:Kendall Mason
  • Post published:August 30, 2021
  • Post category:Amyotrophic Lateral Sclerosis

AstraZeneca is ending a phase 3 trial of Ultomiris, which was being evaluated as a treatment for amyotrophic lateral sclerosis (ALS). The pharmaceutical company acquired the C5 inhibitor after buying…

Continue Reading Ultomiris Fails in Phase 3 Trial for ALS
Phase 3 Trial Data Shows Ultomiris Promise for gMG
source: pixabay.com

Phase 3 Trial Data Shows Ultomiris Promise for gMG

  • Post author:Jessica Lynn
  • Post published:July 22, 2021
  • Post category:Myasthenia Gravis

While myasthenia gravis (MG), an autoimmune neuromuscular disorder, can be treated, there is a smaller subset of patients who are treatment-refractory. Those whose condition is not easily treated are thought…

Continue Reading Phase 3 Trial Data Shows Ultomiris Promise for gMG
Ultomiris Now FDA Approved for Pediatric Patients with PNH
https://unsplash.com/photos/cM1aU42FnRg

Ultomiris Now FDA Approved for Pediatric Patients with PNH

  • Post author:Jessica Lynn
  • Post published:June 10, 2021
  • Post category:paroxysmal nocturnal hemoglobinuria

As of June 7, 2021, an injectable treatment is now available for patients aged 1 month+ with paroxysmal nocturnal hemoglobinuria. The FDA recently approved Ultomiris (ravulizumab-cwvz) for these patients. Previously,…

Continue Reading Ultomiris Now FDA Approved for Pediatric Patients with PNH
ULTOMIRIS Now NICE-Recommended in UK for PNH
qimono / Pixabay

ULTOMIRIS Now NICE-Recommended in UK for PNH

  • Post author:Jessica Lynn
  • Post published:April 19, 2021
  • Post category:paroxysmal nocturnal hemoglobinuria

According to FirstWord Pharma, patients with paroxysmal nocturnal hemoglobinuria (PNH) in the United Kingdom (UK) may soon have a more effective and efficient, and less invasive, treatment option. Currently, the…

Continue Reading ULTOMIRIS Now NICE-Recommended in UK for PNH
Ultomiris Trial for COVID-19 Falls Short in Efficacy
Bru-nO / Pixabay

Ultomiris Trial for COVID-19 Falls Short in Efficacy

  • Post author:Jessica Lynn
  • Post published:January 22, 2021
  • Post category:COVID-19

Much of our news in 2020 was filled with headlines around COVID-19, the viral pandemic which now has over 96.2 million global diagnoses. As we enter into 2021, the numbers…

Continue Reading Ultomiris Trial for COVID-19 Falls Short in Efficacy

Featured


Picture of Family


Metastatic Breast Cancer: Navigating Grief


Picture of Ralph Family walking


Rethinking What It Means to Live With Acromegaly


Illustration of mentor program members


The Let’s Chat CAR T One-on-One Mentor Program: Speaking with Someone Who Understands What You Are Going Through

CLICK HERE TO SHARE YOUR STORY!
We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.
Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

Let’s Work Together!

Partner With Us
Submit a Story

Keep Up to Date

Subscribe to Our Newsletter
Check Out Rare Events
Get Inspired By Our Memes

Learn More

About Us
Rare Diseases and Conditions
Terms of Use
Privacy Notice
Privacy Policy for CA Residents
EU/UK Privacy Notice
Data Privacy Framework: Consumer Privacy Policy
Consumer Health Data Privacy Policy
Cookie Notice

Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope

© Copyright 2024 Patient Worthy

Sign Up With a Patient Worthy Account and Share Your Rare Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info

We're Happy You're Here!

What best describes you when it comes to rare disease? (check all that apply)

What rare disease(s)/conditions are most important to you?

Visit Home Page or

Thank you for signing up for a Patient Worthy Account!

Have a rare disease story to share? Let us know

Share Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info