The United Leukodystrophy Foundation (ULF) is proud and excited to announce a partnership with Marc Nolan, a Chicago-based footwear brand, who is launching a new campaign with us “Celebrating life’s…
The 2020 Virtual Family Conference June 25-27, 2020 This event features live streamed webinars featuring leukodystrophy researchers and relevant content for leukodystrophy patients and their families. The conference will also…
Patient Worthy had the privilege of attending another United Leukodystrophy Conference. The ULF’s 2019 event took place at the end of June in Illinois and had a record setting number…
The 2018 Scientific Symposium and Family Conference This conference will consist of a scientific symposium program that will allow medical professionals and researchers to present the latest research in the…
Two-year-old Clark Cutler's parents felt alone when dealing with his rare disease, until they stumbled upon the United Leukodystrophy Foundation. Clark was diagnosed with Pelizaeus-Merzbacher disease when he was just…
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