Think about it: clinical trials are like a huge strip tease. They’re waiting to put it all out there, but if no one comes, it’s a huge waste of time and money for all involved.
Unfortunately, fear of placebos, concern over side effects, and general confusion means many people keep their HAE clinical trial chastity belts on till the day they die.
It’s a real problem for trials like BioCryst Pharmaceuticals’ BCX4161. Now in the recruitment stage of the process, this double-blind study is testing a new oral treatment. Taken three times daily, it may prevent acute hereditary angioedema (HAE) attacks in adults.
But they can’t finish the study without willing participants, and trust me, there is nothing sexier than consent.
So if you’re on the fence about jumping into bed with BCX4161, here are five reasons to make it a date:
1. Everyone loves oral
Let’s face facts: it’s only very recently that HAE treatment options besides a “prescription” to “hope for the best.” And the five FDA-approved products all involve a needle. BCX4161, on the other hand, is an oral medication. No pain-play required!
2. Longer isn’t always better
There’s something to be said for short and sweet. It’s not exactly an insignificant period of time, but compared to the month-long clinical trials you’d find in oncology, 12 weeks isn’t so bad for the BCX4161 trial.
3. You may get to pop BCX4161’s cherry
While most people focus on the “placebo” part of a double-blind study, you have just as much chance of getting the real drug. That means you’ll get access to a breakthrough oral medication before anyone else.
4. BioCryst Pharmaceuticals aren’t exactly virgins
A company dedicated to rare disease, BioCryst has not only had promising results in previous BCX4161 trials, but they’re developing several other oral medications for HAE.
5. You can share the love
Ultimately, it’s not like you’re marrying the trial. But once the 12 weeks are over and you part ways, the trial won’t forget you. Its findings will go on to benefit the lives of everyone else in the HAE community.
When all is said and done, there ARE risks to clinical trials and it is a very personal decision. The question is, “Are clinical trials right for you?”
If it’s a decision you think you’re ready for, read the clinical trial specifics here and find a study location near you.